Chapter 472 - "I've Been Wanting To Feel Like This For A Long Time"

That's what she said "I've Been Wanting To Feel Like This For A Long Time" at 1930 on Sunday 29th October, the day following the Saturday night when I went to sleep without noticing that I had forgotten to replace the cassette  on her Duodopa pump early that evening. She herself had gone to sleep about 1915 before the Wild Dog carer had left. So around 0100 on that Sunday the pump's cassette ran out of medication; between then and 0600 I woke a number of times to her snorting, snuffling and snoring as well as speaking, sometimes quite distinctly and much more than at other times yet I failed to realise anything was amiss. Although she was sluggish at 0650 when transported from bed to toilet (I did not wake her as usual by 0615 when replacing the cassette and changing pump settings) the rest of her day was quite reasonable and we went shopping. Neuro F. had said to raise night time flow rates in 0.2 mL steps, stopping at 3.4 mL and report should dyskinesias extend into the morning; the FitBit on her right leg had indicated this began to occur at about 3.2 mL. I sent an email but there has been no response. The PD Clinic at West Beer is in 2 weeks so I have made my own adjustments and will inform them then.

Today we intended to be at a birthday party but neither of us feel up to it so I just rang and cancelled. She is very uneasy about continence matters and my doctor has just started me on an additional blood pressure medication and I am not up to driving.

Other comments about our situation are postponed till another time.