Chapter 464 - A Ruined Day
She wanted a new clothes basket for our bathroom; only Kmart on-line seemed to have something suitable. We needed some groceries. I decided to go out this afternoon. Some soiled towels and a leak in bed required some washing first. By mid morning I needed to escape, so suggested we go shopping. I thought she best have a piddle first; which became a desire to defecate (crap) which caused numerous comments along the line of "I can feel it there!" resulting in her donning a rubber glove to search for "it". After 1/2 an hour she gave up and as I helped her pull up her incontinence pants I found them full of shit. And smears on the rear of her jumper, blouse and slacks. This time I did the donning (my own size L's). While seated on the commode she undressed completely, I pushed her on the commode under the shower to clean up, then dry, socks & shoes on to protect her feet before partly dressing, then onto the Sara Stedy to pull up her pants and soon after into the car and down the street, but not before another load of washing was started.
Down the street into the new cafe; our coffees arrived quickly, our meals didn't. Just before I intended to complain, a waitress appeared checking on what we had ordered and 30 seconds later our meals arrived. My calamari was dry and barely chewable. Obviously the order had been lost in a warming tray. Her spud wedges were OK. Then 10 minutes later a young bloke appeared asking if all was OK, to which I replied "this is a bit dry" and refused his offer to correct. We don't need to go there again.
Earlier in the week one of the Wild Dog carers said that on Saturday and Sunday nights her job before us was cancelled, could she "come to us at 1830 rather than sit in a cold car". Of course I agreed. So last evening we prepared the usual matters before 1830 but the woman failed to arrive until 1850. When I pointed out that she had wanted to come at 1830 and I had agreed, the woman replied that the office had given her another job to fill in her time. No one told us to save the stress of sitting on the loo and then the commode for a long time. I was unhappy so shot off an email to the Wild Dog office to tell them I had learned my lesson and will not agree to to "private" arrangements with their carers and I'm sure they want it no other way either. That same carer is expected tonight.
After seeing her podiatrist on Thursday I took her to a dentist appointment that I made after she mentioned that her front lower teeth were at an odd angle. The dentist found nothing amiss and did not bother even to clean them, even though it is over 2 years since she last had work done by another dentist she found "too rough". We celebrated a successful morning by having an excellent lunch at the club, although that evening she became very dyskinetic and twisted in bed. The evening Wild Dog carer commented on her smile, obviously not her usual PD grimace. The dentist described the location of the saliva glands in the mouth; that the ones on each side of the upper gums produce "ropey" saliva and a more appropriate description of the spit as thick as snot her mouth has produced lately could not be found. Since I stopped her using Biotine toothpaste and mouth spray she has not commented on the thick spit, although she occasionally spits into a tissue but nowhere near as much as before. My theory is that her ropey saliva glands are stimulated by the Biotene rather than the glands in her lower mouth which produce thinner saliva.
Wild Dog care minded her while I saw my "shrink" in the late afternoon of Thursday. Another useful chat. He thinks she may benefit from talking of her fears of a nursing home future should I succumb first. I will need to broach the subject with her, for she has negative memories of the therapy in aftermath of the Queen St Massacre many years ago.
I had a RAS assessment at home on Tuesday which will permit me regularly to attend a dementia carers group. She was quite disinterested in what the questioning was all about and went about her own business. It seems I will now be eligible for support in my own right such has domestic help about the home. Although the route to obtaining support is at times none too clear, I am surprised at how much assistance we are given by the government. For instance, the application for additional incontinence aids was approved and I placed our first order on Friday.
So although I feel somewhat down in the dumps tonight, this past week has been good to us.
Down the street into the new cafe; our coffees arrived quickly, our meals didn't. Just before I intended to complain, a waitress appeared checking on what we had ordered and 30 seconds later our meals arrived. My calamari was dry and barely chewable. Obviously the order had been lost in a warming tray. Her spud wedges were OK. Then 10 minutes later a young bloke appeared asking if all was OK, to which I replied "this is a bit dry" and refused his offer to correct. We don't need to go there again.
Earlier in the week one of the Wild Dog carers said that on Saturday and Sunday nights her job before us was cancelled, could she "come to us at 1830 rather than sit in a cold car". Of course I agreed. So last evening we prepared the usual matters before 1830 but the woman failed to arrive until 1850. When I pointed out that she had wanted to come at 1830 and I had agreed, the woman replied that the office had given her another job to fill in her time. No one told us to save the stress of sitting on the loo and then the commode for a long time. I was unhappy so shot off an email to the Wild Dog office to tell them I had learned my lesson and will not agree to to "private" arrangements with their carers and I'm sure they want it no other way either. That same carer is expected tonight.
After seeing her podiatrist on Thursday I took her to a dentist appointment that I made after she mentioned that her front lower teeth were at an odd angle. The dentist found nothing amiss and did not bother even to clean them, even though it is over 2 years since she last had work done by another dentist she found "too rough". We celebrated a successful morning by having an excellent lunch at the club, although that evening she became very dyskinetic and twisted in bed. The evening Wild Dog carer commented on her smile, obviously not her usual PD grimace. The dentist described the location of the saliva glands in the mouth; that the ones on each side of the upper gums produce "ropey" saliva and a more appropriate description of the spit as thick as snot her mouth has produced lately could not be found. Since I stopped her using Biotine toothpaste and mouth spray she has not commented on the thick spit, although she occasionally spits into a tissue but nowhere near as much as before. My theory is that her ropey saliva glands are stimulated by the Biotene rather than the glands in her lower mouth which produce thinner saliva.
Wild Dog care minded her while I saw my "shrink" in the late afternoon of Thursday. Another useful chat. He thinks she may benefit from talking of her fears of a nursing home future should I succumb first. I will need to broach the subject with her, for she has negative memories of the therapy in aftermath of the Queen St Massacre many years ago.
I had a RAS assessment at home on Tuesday which will permit me regularly to attend a dementia carers group. She was quite disinterested in what the questioning was all about and went about her own business. It seems I will now be eligible for support in my own right such has domestic help about the home. Although the route to obtaining support is at times none too clear, I am surprised at how much assistance we are given by the government. For instance, the application for additional incontinence aids was approved and I placed our first order on Friday.
So although I feel somewhat down in the dumps tonight, this past week has been good to us.
posted by Kilpike | 7:30 pm
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