Chapter 466 - Repitition
Although weary of writing this blog I must continue for in the writing of it we have continuity. The reports of the current cyclone striking the USA coast have also mentioned Cyclone Katrina in 2005, at the time I took her to that clinic in Batman City, that first major effort to ease her symptoms, those symptoms which were really mild, when she was able to walk, able to complete her handcrafts, able to socialise and not depend on my help for daily living. So long ago.
She has a pile of clothes partially repaired, modified or to be corrected. I suppose many due to the items being bought from discount racks. I think the pair of trousers she was wearing the day she decided to chop off (literally) one elastic cuff is in the pile, still awaiting dismemberment of the other cuff. From about 0830 to 1630 of Monday 14th August she spent "snipping" the waist band from another pair of trousers bought the day before; that is correct - most of the daylight hours, using a small pair of scissors the band was removed then dismembered to remove its elastic lining and ragged edges "trimmed", leaving small pieces of black fabric and thread across the floor. When I queried why the job was taking so long the reply was that "it had been made so well"! Fortunately these clothing items a re no more that $5.
The following day she returned to cleaning the oven and hot plate again (must be the 3rd time recently even though either is hardly ever used these days). I had been in my dungeon, and on coming to check on her I noticed short strips of something on the floor, the remnants of the heat seal along the upper edge of the oven door, the seal she had wrecked on an earlier cleaning exercise. "Why?" "It was messy" she replied. About to lose my cool, I had to simply walk away.
Two days later she was "cleaning" the corners between, a kitchen cupboard and the wall, to the extent that she used a knife to clean away the dirt she thought was there but as far as I could tell was just the shadow line where the two materials joined at right angles; anyway, paint has been removed. She also cleaned a large fridge magnet from our doctor's surgery until its plastic film coating was damaged then pulled off all the film for the sake of neatness.
On that same Thursday, our optometrist found her eye pressures higher than expected and asked her return in a month for another check. I assume I have administered the Ganfort and AZOPT correctly but I am taking greater care and not passing her a tissue quite as quickly. I forgot to ask what the pressures were.
Myself and one of the Wild Dog carers helping her exercise have noticed that her left foot is sometimes more flexible. On the other hand, I suspect that her right foot is sometimes stiffer. She tends to have her legs bent and feet raised off the bed some mornings prior to the morning dose.
From Saturday night 19 August the Duodopa nightly flow rate was increased from 2.4 to 2.6 ml/hr. Some days the FitBit on her right leg records reduced steps, on other days a great number. I cannot say whether the slowly rising night time dose is having any impact on her dyskinesias.
The Normacol has a beneficial effect on her bowels. Although she no longer sits on the loo for ages passing small pieces, she may sit there for an excessive time because she "can feel something there". Last Thursday she sat on the loo from 1050 to 1205, saying "just sitting there, won't drop out", using a glove to check. She did nothing of bulk that day. I had her do sit-stands at the frame, and that effort released a lot of farting.
Early on Friday morning she woke "twisted", required rolling onto her right side, after a few minutes onto her stomach, then onto her left side, then onto her back; none was easy work. Then she needed to sit up so fortunately raising the head of the bed satisfied her. Her legs were stiff, her leg "twisted", she was now cold but had calmed down. Later that morning she decided to sort the keys from the hooks on a small key shelf I had installed on a wall nearly 16 years ago, the keys being in somewhat of a tangle all that time. Now most of the keys are now attached to a length of fine chain from an old name badge. That occupied her for several hours.
Being Sunday, I must go now to ask whether she wishes to go on a religious pilgrimage around the shops today.
She has a pile of clothes partially repaired, modified or to be corrected. I suppose many due to the items being bought from discount racks. I think the pair of trousers she was wearing the day she decided to chop off (literally) one elastic cuff is in the pile, still awaiting dismemberment of the other cuff. From about 0830 to 1630 of Monday 14th August she spent "snipping" the waist band from another pair of trousers bought the day before; that is correct - most of the daylight hours, using a small pair of scissors the band was removed then dismembered to remove its elastic lining and ragged edges "trimmed", leaving small pieces of black fabric and thread across the floor. When I queried why the job was taking so long the reply was that "it had been made so well"! Fortunately these clothing items a re no more that $5.
The following day she returned to cleaning the oven and hot plate again (must be the 3rd time recently even though either is hardly ever used these days). I had been in my dungeon, and on coming to check on her I noticed short strips of something on the floor, the remnants of the heat seal along the upper edge of the oven door, the seal she had wrecked on an earlier cleaning exercise. "Why?" "It was messy" she replied. About to lose my cool, I had to simply walk away.
Two days later she was "cleaning" the corners between, a kitchen cupboard and the wall, to the extent that she used a knife to clean away the dirt she thought was there but as far as I could tell was just the shadow line where the two materials joined at right angles; anyway, paint has been removed. She also cleaned a large fridge magnet from our doctor's surgery until its plastic film coating was damaged then pulled off all the film for the sake of neatness.
On that same Thursday, our optometrist found her eye pressures higher than expected and asked her return in a month for another check. I assume I have administered the Ganfort and AZOPT correctly but I am taking greater care and not passing her a tissue quite as quickly. I forgot to ask what the pressures were.
Myself and one of the Wild Dog carers helping her exercise have noticed that her left foot is sometimes more flexible. On the other hand, I suspect that her right foot is sometimes stiffer. She tends to have her legs bent and feet raised off the bed some mornings prior to the morning dose.
From Saturday night 19 August the Duodopa nightly flow rate was increased from 2.4 to 2.6 ml/hr. Some days the FitBit on her right leg records reduced steps, on other days a great number. I cannot say whether the slowly rising night time dose is having any impact on her dyskinesias.
The Normacol has a beneficial effect on her bowels. Although she no longer sits on the loo for ages passing small pieces, she may sit there for an excessive time because she "can feel something there". Last Thursday she sat on the loo from 1050 to 1205, saying "just sitting there, won't drop out", using a glove to check. She did nothing of bulk that day. I had her do sit-stands at the frame, and that effort released a lot of farting.
Early on Friday morning she woke "twisted", required rolling onto her right side, after a few minutes onto her stomach, then onto her left side, then onto her back; none was easy work. Then she needed to sit up so fortunately raising the head of the bed satisfied her. Her legs were stiff, her leg "twisted", she was now cold but had calmed down. Later that morning she decided to sort the keys from the hooks on a small key shelf I had installed on a wall nearly 16 years ago, the keys being in somewhat of a tangle all that time. Now most of the keys are now attached to a length of fine chain from an old name badge. That occupied her for several hours.
Being Sunday, I must go now to ask whether she wishes to go on a religious pilgrimage around the shops today.
posted by Kilpike | 10:00 am
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