Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, September 03, 2017

Chapter 467 - No Laughing Matter

A few nights ago her chattering in her dreams woke me, then she laughed, a happiness laugh, almost gurgled. I lay awake wondering what in her past was she recalling; was I there? or were our kids? I can't recall the last time I heard her laugh in happiness, not even giggle, although a few mornings ago one of the Wild Dog carers came to the kitchen after helping her dress, saying "I saw her smiling". I have grown so used to her expressionless face that I take no notice yet wonder what others think. She has spent most of the past week adding finishing touches to a knitted beanie she made; a simple thing long in the making. She was unable to fully see the beanie mounted on her head, even with several mirrors so I too some shots with my phone; blank face stared at me.

The dyskinesia of her legs seems to be reducing as shown by the charts from the FitBit on her right leg. Tonight the overnight Duodopa flow rate will be increased from 2.6 to 2.8 ml/hr.

Her obsession about cleaning continues, joins on cupboards, furniture. At the moment she is chopping up a decorative candle, placing the pieces in a long stemmed vase so that another scented candle can be positioned on top and in so doing makes a hell of a mess on her clothes and the floor. This morning while I had her on the pedal machine she mentioned that a person was attempting to mount a cow (as if it were a horse) on next door's front lawn. I was unable to figure out what object was causing the illusion.

She borders on refusing to take 10ml of Normacol in yogurt or custard. I think she should have two doses a day. The stuff is appreciated when she passes a large stool, although yesterday she passed nothing. This morning I gave her 10ml in Sustagen.

Now to see if she wants to go shopping. Last Sunday I had to call the NRMA because the car battery was flat when I returned with groceries; she had remained in the car because it was raining. A couple of return trips to Hot Air City this week should have put some life back into the battery; lately I have only made several 5 km return trips each week. I need to replace the battery though because unreliability in the care of a wheel chair bound person must be avoided. Yesterday a carer was with her while I had a pot of tea and a chat down at the club. She had to ring me to tell me I was already 10 minutes late returning home at 1230!

0 Comments:

Post a Comment

<< Home