Chapter 572 - Despairing

 Just a quick note; I've attempted, several times thought about writing here this morning but to recount the last couple of weeks will depress me. Not that life and times have been much worse recently, just that I must clear myself of the need to write here.

I went to sleep perhaps at 1900 last night, waking at 0100 this morning to find her reading, badly dyskinetic. I had not reduced her daytime flow rate from 6.5 to 3.5 for overnight. Shit! Also, at about 2230 she had given herself a bolus rather than wake me. Damn! So from 0100 to 0300 I rolled her from left to right side several times and back a gain, rubbed her legs, attempted to cool her, endure the wall fan blowing on this very cold night, before she eventually dozed off. When I woke at 0610 this morning she was already awake!

I had found she has a more peaceful night when the overnight flow rate is 3.5; well, I assume so because I may only be woken once, rather than several times, by the noise of her dyskinetic feet moving her bedclothes or rattling the rails on the sides of her bed.

Yesterday I discovered that once her daytime dyskinesia begins, usually accompanied by leg stiffness, that 20 minutes on the pedal machine under power, calms her and seems to banish the dyskinesia. At about 1000 this morning her legs became dyskinetic so I enticed her back onto the powered pedals, (seated on her wheelchair of course). She became drowsy. When I took her off the pedals some 15 minutes later the dyskinesia had stopped and has not recommenced yet an hour later.

I sent an email to the clinic nurse at West Beer on Thursday night to query whether hospital observation may be in order, as several up there have contemplated in the past year.

Now to attempt a fish and chip lunch down by the river. A sunny day has to be good for something.