Chapter 566 - Just So Sad

Rather than knitting, she finds "mistakes" in knitted panels she thinks she has made long ago, yet I am sure the panels kept in a large plastic box are remnants that were to be thrown out when she was attending the respite group at Wild Dog. Some days ago she began sewing some of the panels together. One day I asked what she was making, as I saw that some panels were being joined into a tube, "A jumper" she said. Perhaps the tube was to become an arm piece? Next day she was unjoining the pieces, using a small pair of snipping scissors, shredding the wool into fibres and short lengths. Mess all over the floor, small piles of spaghetti like lumps, short lengths caught in the wheels of her wheel chair. She laboured in this manner one whole day, at other times most of an afternoon. She is intent on "fixing" or "making" something. I don't discourage her since such behaviour seems to be a replacement for damaging the floor and the like by "cleaning". Most mornings she participates in Dance for PD streaming sessions from her wheel chair and on Tuesdays the local Zoom'ed Dance 4 Wellbeing.

Selected notes from the past weekend

Friday 24th

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0830 Bad dyskinesia through breakfast, gave a bolus of 2.0

0845 To bed, dyskinesia continues, onto RHS, then back, then LHS, partly on front, then return to back, dyskinesia stopped.

0920 Seems asleep, no Exelon replacement yet.

0923 Laying mostly on back, legs slightly bent, head back, mouth open, breathing deeply.

0929 Touching face with L hand. R hand came up took L hand down, fingers of r hand flexing, L hand hard against face pressing hard.

0930 Awake, says feels awful, pain all over, insides "pulling".

0945 Up onto wheel chair, behaving normally, no dyskinesia.

Saturday 25th

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0915 Dyskinesia has been on going since 0830. Gave bolus 2.0

0930 Into bed on RHS, dyskinesia continues. Rubbed legs until dyskinesia stooped, radio on playing bland music, ate a chocolate, dozing.

1030 Awake, onto wheel chair.

Sunday 26th

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0730 Zombie-like sliding her onto the commode. Eyes wide open, mouth agape, tongue showing. Big piddle, onto pedal machine, a little more awake, not speaking or answering questions.

0745 Accepted water bottle and sipped.

0750 Zombie-like as Wild Dog carer arrived to shower and dress her. I decided to return her to bed. Severe dyskinesia stopped after placing on RHS and rubbing legs. Replaced the cassette and pump batteries (latter is usual procedure on Sundays)

0850 Still asleep, no dyskinesia.

0925 Waking, slightly dopey, onto commode, pump off, to bathroom, piddle.

0930 Under shower, Exelon patch off.

0940 Dressing, pump on.

0950 At breakfast.

1005 Exelon patch on.

1130 Pulling knitting apart. Severe dyskinesia.

1145 To toilet, wiped chewable calcium from chin and replaced shirt also dribbled upon, back onto wheel chair, denim jacket on, wanted toilet again. Seems distant and not fully aware.

1200 Transfer from wheel chair into car, very difficult to make her comfortable. On drive around to the cafe she decided she wanted nothing to eat (intention was for fish and chips), asked to drive past new houses. Stopped because she was uncomfortable again, she asked to go home.

1245 Onto bed on RHS, dyskinesias stopped after rubbing left leg for about a minute.

1250 Asleep

1300 Double checked cassette was full, flow rate 7.0, she hardly stirred.

1345 Awake no dyskinesia

1350 Transfer to the wheel chair, head "tingles", to toilet.

1410 Big turds in loo, return to wheel chair, started "knitting" again, asked for a can of lemonade.

1810 Wild Dog carer put her to bed. Cassette replaced, flushed tube, retaped and cleaned stoma.

1950 Heard her calling me, said she rang from her phone yet mine didn't chime, yet I tested both phones were OK. Her back was sore, some dyskinesia, rolled onto RHS and continued reading.

2055 Still reading

Today, Monday 27th

0615 Flow changed 2.8 to 7.0, MD 1.0, remained asleep.

0715 Awake

0730 transfer onto commode, awake and alert, FitBit off, Exelon patch off.

0800 Replace cassette while showering.

0840 Exelon patch on.

0900 Dance for PD session

1030 Mug of Milo and a Tim Tam. Returned to pulling knitted squares to bits.

1100 Continues ripping knitting apart.

And so continues an uneventful day following a stressful weekend.

Next time she becomes zombie-like I will administer a bolus dose. I am sure I have done so some time ago but looking back through the pages of my note books is too confusing and depressing.