Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Saturday, May 23, 2020

Chapter 558 - Simply a Puzzle

The OT that Wild Dog Carer arranged visited on Monday 11th May, along with the EN from Wild Dog (I asked her to be involved). I showed her the dismantled watch and tea strainer, she asked questions, noticed the jig saw puzzle on the table and was told she doesn't like them and throughout the hour consultation the knitted panel (I think I described this before) was being picked apart. As the OT finished I showed her one of the quilts made some years ago; whether the OT was impressed I don't know. The OT left saying a report will be sent with suggestions  for useful hand exercises. I must chase Wild Dog Carers in case they are holding the report.

A few days later she voluntarily began moving the jig saw pieces still on the table. She was not very successful, so I offered to help by assembling the border pieces. Last Tuesday immediately after breakfast I selected a Dance for PD stream for her to participate in for an hour after which we both attempted more of the jig saw puzzle for two hours up to lunch time and after lunch she watched a series on NetFlix. She suffered minimal dyskinesias that day. The same routine on Wednesday, again minimal dyskinesias. It dawned on me that perhaps filling her mornings with Dance for PD and jig saw puzzling may be minimising the dyskinesia, similarly to rolling her onto her side when dyskinesias begin in bed. On Thursday the dyskinesias were very bad from breakfast time and for no specific reason I omitted to place her in front of her PC for a Dance for PD session and I later found her cleaning the floor in front of the sink so I enticed her to the jig saw again. The rest of the day she was bothered by severe dyskinesia. Friday she did Dance for PD immediately after breakfast followed by two hours of jig saw, with me helping her, and the day was quite reasonable for her. I have realised that in attempting to fit jig saw pieces together, she concentrates on making the pieces fit together rather than matching colour and lines of the picture even when I attempt to explain how to match the pieces; she seems unable to recognise the patterns on the pieces.  Now it is Saturday she is following a Dance for PD class for which she needs the arms of her wheelchair removed; rather dangerous.

Just after lunch on Tuesday she fell forward out of the wheel chair; I suspect while the squab of her wheel chair sloped slightly forward she had leaned down to "clean" a spot on the floor and rolled out. She called out to me, fortunately I was just in the lounge room. I was able to lift her using the yellow handled belt back into the wheel chair with little difficulty. That same morning she said she was sorry for waking me during the night (but she hadn't) when she was having "nice dreams about our house in Newcastle (we left there 46 years ago) and that brought tears to my eyes.

Last Sunday between 0200-0600 I watched the live streaming of Parkinson's Foundation's "Care Partner Summit" from the USA. I have begun re-watching segments from the archive of the summit, in particular the segment on cognitive changes.

I must close this because I no longer hear the piano accompaniment to the Dance for  PD. This morning I ordered three wooden puzzles for her.

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