Chapter 200 - An Anniversary of Blogging
I never feel motivated to record here any more. Just a bit depressed with the slow slide I suppose. Some friends are slowly retiring from view and others are going all out on their last flings. I feel we are somewhere on the low side of in between.
On August 1st she had switched to Stalevo at 6am, 12 noon & 6pm. The midnight Madopar was not replaced because she felt she needed the slow release benefit over night. By the 6th she reported being very shaky all day and by late afternoon she had tingling, creepy-crawly feelings across her shoulders. The next evening she was yawning excessively, feeling on the verge of dropping off to sleep but would wake suddenly. By 1am the next morning she had panic attack feelings and prior to getting to sleep around 2am the "someone walking over my grave" feelings (I wonder what primitive human dreamed of that idea?).
Next day, Sunday, she woke with tremors at 5am, rather than to the alarm at 6am. She was agreeable to shopping that afternoon but later said she had tingling across the shoulders all day. Then after 3pm the tingling had spread to her scalp which she wished to scratch. By 10:30pm her mouth was dry and her words were slurred. She was tense, slightly aggressive and spoke very firmly. I could tell that she was on the verge of a panic attack. After discussing the matter, we decided to continue the current dosage of Stalevo (this was the end of 1 week's trial of 3 Stalevo doses a day) as follows:
0600 1x200/50/200 Stalevo
1x 1mg Sifrol
1x 40mg Inderal
1200 ditto all three
1800 ditto all three
2400 2x100/25 Madopar HBS
1x 40mg Inderal
A few times, late morning, afternoon, she has occasionally taken a Madopar Rapid 100/125 in attempt to calm tremors during off times.
We decided to continue this current regime until at least Tuesday to see whether things stabilised and the tingling eased, and if not, she would return to Madopar HBS one dose at a time.
Tuesday came & went. The tingling must have eased somewhat because she did not raise the issue again until Thursday, when at our local PD group another person stated that her Stalevo had been reduced to eliminate dyskinesias. Following that comment she decided to replace the noon Stalevo with 2x100/25 Madopar HBS.
It is now Sunday. The third day. She continues to have tingling across her shoulders but as far as I can gather, not up in her scalp. Dry mouth problems seem lessened. She will decide tomorrow whether to replace another Stalevo.
She continues to use the circulation booster when needed, rarely asks for the treadmill. She usually does some Wii Fit each morning.
Had I mentioned contacting the State PD group by email about dental problems?. Her number of loose and lost fillings concerns me. She is not keen to return to the one in Hot Air City where her legs were strapped and he replaced fillings very gently but those are the ones that seem to now be causing her problems. A local dentist had referred her there. Also, she has had to go to an X-ray lab because dentists are unable to cope with tremors (or may be their equipment). Anyway, the state group advised contacting the group in Hot Air City. I encouraged her to ring to talk to that group. She had some worthwhile discussions with someone there without resolving the dental problems. Someone made the suggestion "to have your neurologist and dentist discuss how to overcome the problems". You must be joking! In talking about these issues at our local group, one person said his dentist used a new type of sedative from which it took him several months to recover - not a very useful comment to someone needing dental work. That person believes he has too much saliva, causing drooling while asleep, rather than understanding that the usual cause for a PWP is ineffective swallowing. Anyway, I am going to another local dentist next Friday & will ask whether that one has experience with PD patients. I am unable to understand why there is no general discussion about dental repair problems for PWP, only lots of preventive actions for those with teeth already, or still, in good condition.
On August 1st she had switched to Stalevo at 6am, 12 noon & 6pm. The midnight Madopar was not replaced because she felt she needed the slow release benefit over night. By the 6th she reported being very shaky all day and by late afternoon she had tingling, creepy-crawly feelings across her shoulders. The next evening she was yawning excessively, feeling on the verge of dropping off to sleep but would wake suddenly. By 1am the next morning she had panic attack feelings and prior to getting to sleep around 2am the "someone walking over my grave" feelings (I wonder what primitive human dreamed of that idea?).
Next day, Sunday, she woke with tremors at 5am, rather than to the alarm at 6am. She was agreeable to shopping that afternoon but later said she had tingling across the shoulders all day. Then after 3pm the tingling had spread to her scalp which she wished to scratch. By 10:30pm her mouth was dry and her words were slurred. She was tense, slightly aggressive and spoke very firmly. I could tell that she was on the verge of a panic attack. After discussing the matter, we decided to continue the current dosage of Stalevo (this was the end of 1 week's trial of 3 Stalevo doses a day) as follows:
0600 1x200/50/200 Stalevo
1x 1mg Sifrol
1x 40mg Inderal
1200 ditto all three
1800 ditto all three
2400 2x100/25 Madopar HBS
1x 40mg Inderal
A few times, late morning, afternoon, she has occasionally taken a Madopar Rapid 100/125 in attempt to calm tremors during off times.
We decided to continue this current regime until at least Tuesday to see whether things stabilised and the tingling eased, and if not, she would return to Madopar HBS one dose at a time.
Tuesday came & went. The tingling must have eased somewhat because she did not raise the issue again until Thursday, when at our local PD group another person stated that her Stalevo had been reduced to eliminate dyskinesias. Following that comment she decided to replace the noon Stalevo with 2x100/25 Madopar HBS.
It is now Sunday. The third day. She continues to have tingling across her shoulders but as far as I can gather, not up in her scalp. Dry mouth problems seem lessened. She will decide tomorrow whether to replace another Stalevo.
She continues to use the circulation booster when needed, rarely asks for the treadmill. She usually does some Wii Fit each morning.
Had I mentioned contacting the State PD group by email about dental problems?. Her number of loose and lost fillings concerns me. She is not keen to return to the one in Hot Air City where her legs were strapped and he replaced fillings very gently but those are the ones that seem to now be causing her problems. A local dentist had referred her there. Also, she has had to go to an X-ray lab because dentists are unable to cope with tremors (or may be their equipment). Anyway, the state group advised contacting the group in Hot Air City. I encouraged her to ring to talk to that group. She had some worthwhile discussions with someone there without resolving the dental problems. Someone made the suggestion "to have your neurologist and dentist discuss how to overcome the problems". You must be joking! In talking about these issues at our local group, one person said his dentist used a new type of sedative from which it took him several months to recover - not a very useful comment to someone needing dental work. That person believes he has too much saliva, causing drooling while asleep, rather than understanding that the usual cause for a PWP is ineffective swallowing. Anyway, I am going to another local dentist next Friday & will ask whether that one has experience with PD patients. I am unable to understand why there is no general discussion about dental repair problems for PWP, only lots of preventive actions for those with teeth already, or still, in good condition.
posted by Kilpike | 8:28 am
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