Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, June 13, 2010

Chapter 195 - Nothing Much to Say

Almost a month since I posted here and in consequence I suppose there have been a lack of readers. Her pains in her legs continue. A couple of days ago she came upon some comments about the combination of Sifrol and Madopar causing leg pains. I have not yet seen the comments.

Several weeks ago she began using our village pool for exercise with her friend around the corner. After each session, maybe half an hour, her tremors were worse and into the following day. So she has discontinued this gentle exercise.

Usually, at least once a day, she asks to use the tread mill for 5 minutes or so. I sit on a stool near the tread mill to give her confidence that she will not fall. The tread mill seems to be the only relief she has from the leg pains.

Last week end we spent 3 nights in our favourite motel in Hot Air City; one night before and two nights following a biopsy that I suffered. We return this coming Wednesday to learn the results. My only fear is that our caring roles may be reversed some time in the future.

She bought quite a lot of fabric for quilts for which she is busily embroidering designs; intending to make quilts for the next generation of nephews/nieces. And that is good for her.

We ran our local PD group last week. I showed Oliver Sacks YouTube videos about the role of music for neurological problems. One lady asked for a copy of the exercise videos I showed the previous month. Very satisfying to broaden people's knowledge (as well as my own) on these matters even if sourced from YouTube. Also a TED talk by Sacks. Another of his talks gave her an opportunity to talk about her Blue Elephants. I wondered how many in the group had experienced their own hallucinations but were not saying.

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