Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Monday, June 14, 2010

Chapter 196 - Mis-reporting

Do I not listen? Does she not explain?

This morning as she lay in bed she said "It's so lovely laying in bed without pain." When I queried her I learned that as soon as she begins moving to get out of bed her pains begin, and worsen considerably as she takes steps. Today she needed the tread mill straight away. As she ramped up the speed I asked when the pain eased. It seems somewhere about 3km/hr; above this the sharpness goes away and she is left with a dull ache. She cranks the speed to 4km/hr but has to stop after 9 minutes because she is becoming breathless and her mouth is dry and sticky. Having shuffled onto the tread mill she is able to walk away from it. We discuss her pain; when it began; does she wish to go back to K; start in the pool again. She says she feels the benefit of both but pays with stiffness and pain the next day. I have misunderstood that she has continued with sciatic pain all along; that it's effects on her lower back and hips pale into insignificance with the "sharp" pain in her lower legs therefore she hasn't described the upper pains to me so i had assumed incorrectly that such no longer existed.

She just had a shower, needing the shower chair in her bathroom (it has been kept for sometime unused in the other bathroom) for safety. Yet when she finished showering she picked up the mat before returning to the bedroom. I complained that picking up mats and such was dangerous in such circumstances, but she says it's OK because she hangs onto the disability rails. She called me on the CB to clip her bra straps. Then I mopped the bathroom and completed the usual tasks.

She is now putting a couple of rollers in her hair as we are going to friends for lunch. She wants to do the Wii rowing squat because that alleviates the leg pain as well, I learn, when I want to put the balance board away so that she doesn't trip over it.

She calls me on the CB (saying "sorry" for calling me; I complain that there is no need to apologise for calling me) to get the Wii started; when she is shaking the Wii has trouble detecting her weight so fails with an error condition. We have tricked it by having me stand on it first. This morning even that fails so she is unable to weigh herself. She still wishes to do the rowing squat so I reboot the Wii and go straight to the Aerobics and the Rowing Squat, although I still need to stand on the board first. She has to hang onto her stepper to maintain balance but is unable to reach the blue line on the TV screen for any of her 45 squats, although the action attempts are helpful. She decides to do the stepping routine so I set that up for her with the board on its height extension. And I must remember to recharge the batteries in the board when she finishes; the Wii is complaining.

I check on her as she finishes 10 minutes of stepping. "Want to do it again?" "Yes, when I get ny breath back. I feel a little light headed." Her blood pressure is checked - 145/90. I leave her to begin stepping when she wishes.

Once more I check on her. She was unable to get into the rhythm of doing another stepping session, so put the Wii board away and charge the batteries in both it and our remotes. She asks for one of my dry biscuits because her stomach feels churned. She wants nothing to drink with it since she doesn't wish to go to the loo around at the friends' place while we are there for lunch.

Finishes the dry biscuit and goes to the loo.

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