Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, September 20, 2009

Chapter 174 - Without Lines

For a whole month I have lacked the need to post here. Her condition has been so "normal" that I usually don't notice her little problems. Except for times like yesterday when we were preparing lunch for friends and she was helping in the kitchen. As soon as she does that her back stoops and pains so much she asked for her elastic bandage to be wrapped around her middle as well as her ergonomic stool to sit on. Yet a short time later away at the dining table she exclaimed "Look I'm alright now, out of the kitchen!" I could still see her stooping slightly but I just said "It must be psychological." We enjoyed our lunch and 5 hours of chatting with our friends, all the time seated on wooden chairs at the table.

Our last week or so has been filled with social engagements. Lunch at our local club (to celebrate my birthday) following our PD group meeting that we "chaired" (played some Parky MP3 files I downloaded to stimulate conversation), an evening meal at other friends for my birthday, Sunday lunch at the club in the Highlands Town with an Ugly Sister & Better Half. Monday she attended the hospital physio group that has recommenced. Then an unexpected overnight PD house guest who has emotional problems with her carer (that caused her to miss her usual Tuesday's KYB meeting). On Wednesday night a dinner with out-of-town machine embroidery friends/contacts. We have been busy!

All the above plus several times shopping. When out together she holds my arm, only requiring her walker when she walks around the bend in the street to visit friends.

A few weeks her ago she began a production line of embroidered 'fridge magnets and cards for Xmas. Then she began patch work again. The lounge room floor together with the dining table have been covered in pieces of fabric. She has completed one with wadding and backing fabric - this was the one using colours I was critical of about a month ago, causing her to return the pieces to the cupboard. She decided to sew it together in spite of me and the result is quite presentable. I tell her my colour perception is much different to that of a woman. Another quilt is awaiting completion.

Her medication regime continues as last reported. Last week I re-stocked her vitamins etc from the on-line pharmacy. A costly exercise without proven benefits, except that her well being has improved so much during the past year that we cannot dismiss the possible effects gained from these non-prescribed medications. Even though I suspect that Sifrol and regular exercise with Wii Fit have contributed most to her improvement. Although she spends more time with Wii Fit than I do (since we bought the device, was it April?, I have completed about 72 hours and she maybe 10 hours more) I have lost 7 kilos and she maybe 5 kilos. This may be due to us performing different exercise - she is unable to do the hula hoop and doesn't do the jogging as I do.

Her finger tips still have numbness each morning and there are pains in her lower legs until she begins moving each day. I assume these issues are reducing because she never complains about them since I usually have to ask. She often exclaims that she is losing her balance should I give her a squeeze or change direction too quickly when walking together.

We have become more physically intimate. Perhaps such an idea is repellent to "younger" readers that may assume that minds and bodies reaching the dawn of their 7th decade are incapable of such activity due to age, let alone their various health problems. Last night as I looked down into her face I saw peace and contentment, without any lines and wrinkles of age and I felt young again.

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