Chapter 166 - Mostly Good Times
While living is comfortable there seems little to report and then the minor bumps I forget within a day or two. Perhaps that is how we are built.
After mass producing towel-toppers she decided to make an embroidered apron, with pockets, and trim around the edges, for a friend who is leaving our village. Even though he has been my friend, she thought a gift was appropriate. Then she made herself one as well. Now she is stitching a few purchased designs for no particular reason.
Within a week of 23andme receiving her saliva sample she received notification that her DNA analysis was complete and on line for inspection. They say she has the LRRK2 gene mutation. Search on line for what this means. In a way, this is a relief because over the years neurologists have questioned the nature of her PD and puzzlement shown by experts is disturbing. As a friend told us earlier this week "It's comforting to be able to put a name to it" he said as he was telling us that he has just been diagnosed with Pick's Disease, a "wasting away" problem of the front left frontal lobe of his brain (he had a Quicktime presentation of scans of his brain to show us) which is resulting in untreatable deteriorating speech, reading and comprehension problems. He has had this problem for many years. I am guilty of thinking poorly of him for his "personality defects". There are worse maladies than PD.
Her arm pains and numbness at night while sleeping continue to give her much discomfort, She frequently rises early for relief. There seems no relationship between this and exercising with Wii Fit and Sport. She often beats me at bowling and has made Professional status once briefly. She is still unable to do the Hoola Hoop. The hospital physio says she has improved out of site. We seem to be singing the praises of Wii Fit to all and sundry.
The funeral of a friend here in the village resulted in her cousin visiting us after the service. She enjoyed that. Then last Tuesday we trained to Big Smoke to meet another cousin. We sat talking at Central Station then retired to Paddy's Markets for lunch then returned to Central for our respective homeward travels. They would have come down here to stay with us for a couple of days except that she refuses to contemplate setting up beds in our garage since I have taken over the 2nd bedroom for embroidery purposes. I don't think they would have minded. After all, there are curtains across the roll-a-door.
Yesterday mid-afternoon she felt "off", needing to lay down. So she slept for well over an hour. She was ill at ease all evening, slight tummy problems and flatulence. Enough to discourage her from Wii fit exercises. I welcomed a night off. She seems better this morning, although she rose after her 6am meds due to her right arm.
After mass producing towel-toppers she decided to make an embroidered apron, with pockets, and trim around the edges, for a friend who is leaving our village. Even though he has been my friend, she thought a gift was appropriate. Then she made herself one as well. Now she is stitching a few purchased designs for no particular reason.
Within a week of 23andme receiving her saliva sample she received notification that her DNA analysis was complete and on line for inspection. They say she has the LRRK2 gene mutation. Search on line for what this means. In a way, this is a relief because over the years neurologists have questioned the nature of her PD and puzzlement shown by experts is disturbing. As a friend told us earlier this week "It's comforting to be able to put a name to it" he said as he was telling us that he has just been diagnosed with Pick's Disease, a "wasting away" problem of the front left frontal lobe of his brain (he had a Quicktime presentation of scans of his brain to show us) which is resulting in untreatable deteriorating speech, reading and comprehension problems. He has had this problem for many years. I am guilty of thinking poorly of him for his "personality defects". There are worse maladies than PD.
Her arm pains and numbness at night while sleeping continue to give her much discomfort, She frequently rises early for relief. There seems no relationship between this and exercising with Wii Fit and Sport. She often beats me at bowling and has made Professional status once briefly. She is still unable to do the Hoola Hoop. The hospital physio says she has improved out of site. We seem to be singing the praises of Wii Fit to all and sundry.
The funeral of a friend here in the village resulted in her cousin visiting us after the service. She enjoyed that. Then last Tuesday we trained to Big Smoke to meet another cousin. We sat talking at Central Station then retired to Paddy's Markets for lunch then returned to Central for our respective homeward travels. They would have come down here to stay with us for a couple of days except that she refuses to contemplate setting up beds in our garage since I have taken over the 2nd bedroom for embroidery purposes. I don't think they would have minded. After all, there are curtains across the roll-a-door.
Yesterday mid-afternoon she felt "off", needing to lay down. So she slept for well over an hour. She was ill at ease all evening, slight tummy problems and flatulence. Enough to discourage her from Wii fit exercises. I welcomed a night off. She seems better this morning, although she rose after her 6am meds due to her right arm.
posted by Kilpike | 7:50 am
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