Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Monday, September 22, 2008

Chapter 142 - Asserting Independence

Our stay in Big Smoke turned out to be a very satisfying break for us. I spent 4 tiring days in the workshop, the only bloke midst 11 women, while she was only on her own one relaxing day reading a book. Sisters & a cousin kept her company for parts of the other days. She even wandered a shopping centre for several hours while accompanied by one sister. I had intended visiting friends on the Sunday afternoon that we arrived but she had no desire to get back into traffic and anyway I was worn out carrying our luggage and equipment from the bowels of the car park up to our room. Her only difficulty was 5 nights on an unforgiving mattress.

Last Tuesday she decided to change to 3x125ug Sifrol at 6, 12 & 6 leaving the CR unchanged thinking this will help with sleep. Perhaps the change has helped. The MP3 player failed with a dead battery so I bought another. She did not want the PD meditation on the new MP3, just the sleep inducing file.

At the local GP she mentioned that one of the side effects of Sifrol was an increased risk of Melanoma. He checked the spot on her left leg (convenient because it is her right that tremors badly & has violent dystonia when she is under stress), declared the spot changed in size & referred her to a local specialist. So on Wednesday after a very cursory inspection (that is worrying, the spot was obviously a nasty one or else the bloke enjoys his work) he declared he was free to chop it, and another smaller one on her back, the following afternoon. Although the spot on her leg was in an area usually requiring a skin graft, he thought such a complication was not required. He performed the job the following afternoon. Bandaged on her leg & back she now awaits the pathology results which may take up to a fortnight.

She is doing a number of small tasks now that I find unusual after so long a time. Simple little things like taking out kitchen rubbish that we collect in super market plastic bags on the bench top, picking up the bath mat (I keep asking her not to do that because on the floor the mat reminds me to mop the shower) and other small actions, hardly noticeable that I can't remember. And I haven't helped with dressing in ages.

She showed interest in an embroidery project I will be involved with, so I enrolled her. Perhaps completing the project may restore her confidence & enthusiasm.

She becomes annoyed when I have attempted to have her increase the Sifrol dose in preparation to taking the 250ug that the GP has wished to prescribe for her. Last week she should have arranged to visit the GP for the new prescription, postponed that I suppose while thinking of the job on her leg, so today will run out of the low dose Sifrol. Early today she made an appointment for 3pm and then contacted the chemist who will order the larger Sifrol dose on spec, to be available after 5.30pm. I'm proud she is organising these matters by herself.

0 Comments:

Post a Comment

<< Home