Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Tuesday, March 11, 2008

Chapter 125 - Passiveness

I suspect she has become more passive, although no one else has made comment. In comparison, I realise I am becoming more verbose when in contact with others; perhaps I have always been so, I wonder whether I am compensating. But she sits in her chair quietly. I wonder whether others still consider her face animated.

Her caring specialist physician was not concerned about the damaged blood vessel in her thumb when he saw it on Thursday. He understood what it was, maybe he had personally experienced a sharp sting in a finger then a spreading stain of blue, whereas other doctors seemed not to understand when she had mentioned it to them. Anyway, there seems no need to be concerned. I was tempted to ask whether the same can happen elsewhere in the body. As usual, she attended the podiatrist the day before to have her toes "done" to avoid having the caring specialist physician attack them.

The 9 segments of the lace doily were completed on Thursday amid much concern that she had not enough time to complete this birthday present by Sunday. She persevered, tacked the segments together, soaked them to remove the soluble stabiliser and after drying began hand stitching them together. Tortuously slowly. Two days work. She thought she would not complete the work in time for Sunday. But she did. We are both proud of her effort. I wonder whether she will attempt more - I really hope so. She hand sewed until unable to control her legs, then rested, then began again. Repeatedly.

On Sunday we birthday lunched with our friends at a restaurant in a small highway by-passed town, more a village, half-way to Hot Air City. An old coach house place, low ceilings, white washed un-flat, non-vertical walls. Looks as if collapse is imminent yet defied by having stood so long. Great food, service, a "we must come here again" place. Somewhere around the sweets course her tremors began, quite strongly; her legs were restricted by a table leg. I pulled her chair back so that she could stretch her legs a little. Then quite quickly her problems subsided. We were there a little over two hours, she had her 2pm pills just before we left for home. We then spent another two hours at our friends' place sampling some recently preserved figs in pastry over blue vein cheese. A perfect finish for a beautiful day. I was surprised that she seemed to suffer no after effects.

This morning she plans to return to KYB. They are relocating to another hall that may be more comfortable to all concerned.

UPDATE She was crying in her chair when I came out of the bathroom, dressed & shoed ready to take her to KYB. "I'm a mental case" she sobbed. I attempted to reassure her, that she had had a couple of stressed & cramped experiences at the meeting. She fears she has developed a phobia, which may be the case after several uncomfortable experiences. I assured her she has coped well with the lace making & Sunday's lunch, that yesterday Monday she was quite well. If only she was willing to call me to help her out of the meetings once she became uncomfortable but she hates drawing attention to herself. She says none of the ladies are capable of helping her stand so that she can walk about a bit to relieve the stress, that's all she needs to do. She needs company other than mine & the TV.

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