Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Monday, February 04, 2008

Chapter 121 - A Remission of Sorts

I called at the bathroom door this morning, as I usually do, "Are you OK Dear?" "No" she replied "I washed my hair. The mat was in the wrong place. The shower rose was at a different angle." There she was dripping wet, needing help, the first morning she has needed help in what seems weeks. "I'm a creature of habit" she referred to my having disturbed things by cleaning the shower. I dried her then helped her with dressing back in the bedroom.

So where is the remission you ask? Since last weekend she has daily made at least one piece of lace on her embroidery machine, each piece taking between 2 and 3 hours. She has threaded the machine, replaced bobbin thread, hooped the soluble plastic, transferred files and coped with small difficulties. Almost as good as old times. When the plastic began to tear near the end of one stitch-out she realised her legs began to shake a lot, more than "normal". The barrier to embroidery seems to have been the difficulty hooping the fabric, whereas a few layers of plastic she finds easy.

She spent a lot of time watching the tennis last weekend. After the men's final she took a couple of Panamax to calm her shaking legs, aggravated by the excitement & tension.

Mid-week she made a cream cheese & jelly sweet in paper cups then kept in the fridge (I was called upon to do some of the stirring), one each for late evening indulgence, complete with a small drop of liqueur. Amazing, she has avoided small doses of alcohol for a long time!

Sometime about 4am last Saturday I woke to see her little torch shining in the dark, she must have stopped her 2am alarm for her usual CR and returned to sleep. It was then too late to take it. The alarm was mucked up and we slept through till 6:30am, she then took her usual Sinemet Cr & Inderal saying as she sat on the side of the bed "I should not be able to move now after missing that CR." The joints of her right leg were more painfull than usual, so she took 2 Panamax then a little later walked out to the laundry & return without difficulty and on the way back to the bedroom began another piece of lace embroidery on her machine. A little later, puzzled, I went looking to see why a machine noise was coming from her sewing room.

Since early Sunday morning she has missed another two 2am Sinemet CRs, on purpose or not I don't know. Perhaps this morning's relapse is just her system's response.

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