Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Thursday, March 24, 2022

Chapter 627- A Rose by Any Other Name

I have written in posts past about the occurrence of what I have called "Zombie Mode" in my PWP. Remember I quoted the doctor on duty at our local Emergency who said in answer to my question "What will I do next time this happens?" to which he answered "Wait a little longer" and the notes scribbled on a sheaf of results of tests performed on her after someone queried the hallowed halls of West Beer suggesting to me, at least, that the elderly make mistakes in handling a Duodopa pump?

I have often searched on-line for professional descriptions and a professional title to Zombie Mode, when my PWP stops all conscious activity, eyes wide open staring, sitting upright in wheel chair or commode, without dyskinesia, or any other movement, and her BP and oxygen level OK. An Allied Health Professional suggested some time ago that the symptom may be "Petite Mal" although such tend to be of short duration, observed in children without suggestions that female PWP's in their late 70's suffer the problem.

By sheer good luck while Googling combinations of suitable words I stumbled upon and read a few descriptive phrases at     https://connect.mayoclinic.org/discussion/parkinsons-unresponsive-episodes     where I read all the posts to learn that there are many carers out there puzzling about "seizures" lacking a meaningful name. Has anyone in either a white coat or a three piece suit studied these "episodes"? Perhaps if I Google often and long enough  I may discover how to deal with my loved one switching off into a trance like state for a few minutes or for an hour or two. And with repetition, such an event no longer scares the hell out of me. But one day will she not come out of it?

This morning I answered a query within an email  with some raw details (usually I don't do that) and received, in part, the following "Poor lady has had a long battle with illness as I remember she was not a ‘well woman’ when we all first met back somewhere around 2007. That time frame seems an eon in itself. It must be so sad for you to watch, I just cannot imagine!!!!"

      

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