Chapter 620 - Began a New Notebook

 The day following my last post I began a new A5 size spiral bound notebook recording daily events in our sheltered lives. I filled the nominal 300 pages (sometimes I scribble shopping lists and such like on pages that are then ripped out) with notes from 23 October 2021 to 22 January 2022 with handwritten scrawl, always difficult to read but growing worse each year now, so with abbreviations and spelling errors (no intelligence underlines with red) I imagine much is unreadable by others. Some words may be highlighted or in block letters or perhaps underlined or surrounded with lines in order to show something notable. Pages are dated and lines show the time an event occurred. I note any issues that impact on her health and well being, especially any mistakes I make, or think I made, including things I forget to do.

For instance, at 0615 of Friday 28th January I discovered her Night pump was not running, although it was turned on. (West Beer provided two pumps last September, Day pump to run 0600 to 2200 each day, replaced by Night pump at 2200 each night). I had made a note on the previous night "2200 Replaced DAY with NIGHT", the assumption being that I started the pump. However, she sometimes holds a pump as a nerd holds a smart phone, with both thumbs on the screen and in her case, her left thumb is on the button to "stop" the pump, said button needing to be held for a period of time  while the pump sounds an alarm and symbols roll across the screen. Although I have often noticed her holding and inspecting the pump in this manner, I have not known her to press the button and turning off the pump. So I accept that I probably forgot to start the NIGHT pump after turning it on. She was very lethargic, zombie-like, asleep but restless then woke with dyskinesia at 0825 so I got her up and so began an uncomfortable day for her. At 1330 I convinced her I should lay her on her bed. As I pushed her wheel chair towards the bedroom door she fell forwards out of it onto the floor. After checking her for injuries and pain (there was a pain in her left arm that hardly bothered her) I used to sling lifter to lift her and then laid her onto her bed. After intervals of sleep and dyskinesia she asked to get up into her wheel chair at 1600. I dressed her in a nighty. the decided to keep her in bed. I fed her part of an evening meal at 1715. Laying on LHS, back and RHS were needed to minimise dyskinesia, by 2000 she asked to listen to a library book. I fell asleep, waking at 2140 to find her very dyskinetic, breathless, sweaty while attempting to pull out the seam on a pillow. I sling lifted her onto the commode and gave her 8 hydralyte tablets in 800mm of water to compensate for her sweating, then onto the foot pedals for a short while before putting her in front of the TV in the back room to watch episodes of Midsomer Murders until midnight when I put her back to bed. About 0130 she was asleep without dyskinesia (yes I know but in her case she may be "asleep" when her legs are dyskinetic.) I checked her several times during the remainder of the night. The next day, Saturday, was on the bad side of being a reasonable day.

I suspect she is hallucinating much more than she says. At 0230 26th January when I checked on her I found hert awake without dyskinesia when asked "Who are all these people?" At 0845 this morning as I was about to get her up she asked "Have F and N [her sisters] gone?" She has asked that question before. She sometimes mentions seeing people outside.