Chapter 547 - Just a Week Tolerated
After checking my last week's post here I went looking for the new blouse she had damaged last weekend. It had been left hanging from the Sling Lifter parked in her sewing room. Last Wednesday her carer while I absented myself for respite "helped" her clean up the many patch work pieces that she had removed from boxes and left on the floor of her sewing room during the previous week. I suppose the lost blouse was either hung up some where or placed in one of her many boxes containing fabric scraps, ruined clothing and the like. I am unable to find the blouse, getting a pin stabbed finger as a reward; she has uncompleted bits of projects pinned together and jammed into drawers and boxes. Perhaps the blouse was thrown into the garbage?
Anyway, on that respite day I was nearly skittled after I left the car parked at the Workers and walked across a side street, after waiting for a stream of cars to go by, but as I stepped out another car approached so I stopped. The driver saw me and turned on the left turning blinker, and that I interpreted as an indication the car was about to pull into a parking slot at the gutter before reaching me. My assumption was incorrect, for as I stepped out the car proceeded towards me. A few quick steps got me out of the path of the car which pulled into a slot about 10 metres beyond me. From there to the shops and back again to the club I only crossed at the lights. At the club I had my usual pot of tea and lunch, feeling "lost", tired, confused and when a friend rang suggesting I buy a sandwich and join him and others at his organisation I had to refuse. I explained I was not feeling well and should not be out on the roads. I returned to reading New Scientist and a George Gently novel. At times I simply crave being left alone without interruptions and responsibilities.
She has been particularly dyskinetic this week.On Thursday about 0500 I was awakened by her wild kicking in her bed. I decided, since she had been on the night time flow rate of 3.2, to give her a Morning Dose of 1.0 and although the screen indicated such, there was no pumping action to decrease the indication from 1.0 to 0.9 to 0.8 etc. So I tried selecting a Bolus Dose but the pump did not register this at all, probably because it was in a lock out mode attempting a Morning Dose. To hell with it, this registered to me as an unreliable pump, so I set up the spare pump which worked OK. Further fiddling with the old pump proved that removal and reinsertion of its batteries cleared the problem. I am yet to receive a reply from the Clinic Nurse to my request for a new pump. Doing a master reset by removing the batteries is an unsatisfactory procedure.
Friday a visit from a Nurse from Wild Dog Carers. She had intended to be here for an hour but left 2 hours 40 minutes later. She was updating the Wild Dog records which were years out of date and asked a lot of medical questions to which I gave verbose answers. New care plan documentation was presented which was expected to be signed and I refused, sine there was no opportunity to read it and "management" had already signed before hand although the document was expected us to sign in the presence of management. Another document with blank check boxes was to be signed also but because I refused, it was taken away. I kicked myself later that I failed to make a copy of it. When I asked questions the nurse replied that she was unable to answer management related questions. Yet the organisation charges exorbitant "management" fees.
Yesterday, we stitched out a simple design on her Janome 10000, the first stitching she has done in years. I did the threading jobs. An enjoyable time together. What was evident though is she needs reading glasses because she was unable to see to cut threads down on the work. I intended to help her do another this morning when I found her "sorting" things again, collecting odds and ends in heaps on the floor. Time to check on her and have lunch.
Anyway, on that respite day I was nearly skittled after I left the car parked at the Workers and walked across a side street, after waiting for a stream of cars to go by, but as I stepped out another car approached so I stopped. The driver saw me and turned on the left turning blinker, and that I interpreted as an indication the car was about to pull into a parking slot at the gutter before reaching me. My assumption was incorrect, for as I stepped out the car proceeded towards me. A few quick steps got me out of the path of the car which pulled into a slot about 10 metres beyond me. From there to the shops and back again to the club I only crossed at the lights. At the club I had my usual pot of tea and lunch, feeling "lost", tired, confused and when a friend rang suggesting I buy a sandwich and join him and others at his organisation I had to refuse. I explained I was not feeling well and should not be out on the roads. I returned to reading New Scientist and a George Gently novel. At times I simply crave being left alone without interruptions and responsibilities.
She has been particularly dyskinetic this week.On Thursday about 0500 I was awakened by her wild kicking in her bed. I decided, since she had been on the night time flow rate of 3.2, to give her a Morning Dose of 1.0 and although the screen indicated such, there was no pumping action to decrease the indication from 1.0 to 0.9 to 0.8 etc. So I tried selecting a Bolus Dose but the pump did not register this at all, probably because it was in a lock out mode attempting a Morning Dose. To hell with it, this registered to me as an unreliable pump, so I set up the spare pump which worked OK. Further fiddling with the old pump proved that removal and reinsertion of its batteries cleared the problem. I am yet to receive a reply from the Clinic Nurse to my request for a new pump. Doing a master reset by removing the batteries is an unsatisfactory procedure.
Friday a visit from a Nurse from Wild Dog Carers. She had intended to be here for an hour but left 2 hours 40 minutes later. She was updating the Wild Dog records which were years out of date and asked a lot of medical questions to which I gave verbose answers. New care plan documentation was presented which was expected to be signed and I refused, sine there was no opportunity to read it and "management" had already signed before hand although the document was expected us to sign in the presence of management. Another document with blank check boxes was to be signed also but because I refused, it was taken away. I kicked myself later that I failed to make a copy of it. When I asked questions the nurse replied that she was unable to answer management related questions. Yet the organisation charges exorbitant "management" fees.
Yesterday, we stitched out a simple design on her Janome 10000, the first stitching she has done in years. I did the threading jobs. An enjoyable time together. What was evident though is she needs reading glasses because she was unable to see to cut threads down on the work. I intended to help her do another this morning when I found her "sorting" things again, collecting odds and ends in heaps on the floor. Time to check on her and have lunch.
posted by Kilpike | 12:24 pm
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