Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, September 08, 2019

Chapter 530 - Sunday Morning Asleep

She will wake soon. After I fitted the Exelon patch this morning, shortly after 0900, she needed her feet up and went to sleep. A little later she wished to lay down so I slid her from her wheel chair to her bed where she remains asleep at 1030 as I type this saddening story.

I took her to her first appointment at the physio place where we were discouraged about lack of interest in her left foot as the "drop foot" became permanent. But that is where the GP referred her and I didn't protest after our unsatisfactory visit to the complex at the edge of town, perhaps a year ago now. A young male physio examined her feet, did not think massage was appropriate (she remembered the "massage" attempted by the woman that had hopes of becoming a PD nurse, now that was years ago, I had forgotten), and decided to concentrate on her hands after she mentioned tingling and numbness in her fingers and that her interests involved sewing. So he had her do some finger exercises while holding a disposable coffee cup, suggesting she performs this exercise several times each day for about 10 minutes and return to him sometime after her glaucoma and cataract  operations due on 18th September. We were pleased with his interest and attention. After the physio we had afternoon tea at the Soldier's, her first time down the street in quite awhile.

She did not fall asleep before or during her attendance at Dance for Wellbeing last Tuesday . We did not linger afterwards because I had contracted a disease (my annual dose of Man Flu) probably after meeting with the Sisters for lunch at the Club up the 4 lane on the Friday before.

More work has been done on her quilt, a repeat of what was undone some weeks ago, pinning lacy edges around the square of fabric. One day in attempting to use the sewing machine the dogs were lowered so in an endeavour to "fix" the problem, the end cover of the machine was removed. I just entered the room in time to find an internal spring and  screw removed, although I suspect these may have fallen out when she removed the cover.

Each evening in bed she reads part of a Betty Neal novel on the eBook reader supported on a flexible arm over her bed. She slowly works her way through these novels although I suspect she may re-read portions many times over. Lately she is still reading well after I have put my eBook away and gone to sleep.

In an attempt to monitor her while I am out of the room, I bought two Echo Spot devices (Amazon) and after discovering that our Prime subscription also provided music as well as movies I added an Echo Dot just for music to the collection of consumer gimmicks. One Echo Spot is now mounted,  using an adjustable arm with quantities of duct tape, upon her wheel chair so no matter where she is I can monitor her well being. The other Echo Spot sits next to my keyboard so while I'm here in my dungeon she can see me as well. The application installed on my mobile phone allows me to check on her from anywhere else I may be. I thought she may object to such close monitoring but she doesn't seem bothered about it. We both should be bothered now that the operatives at Big Brother Amazon are able to watch and listen to us.

She doesn't think the Exelon patches are helping her. One of the side effects is drowsiness and I suspect that is calming her. Her bouts of sleep do not occur every day so may not be impacted by the patches.

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