Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, July 14, 2019

Chapter 524 - Sleepy Head

In recent weeks she has been sleepy, sometimes asking to lay down on her bed. I have not taken too much notice of this.Today we had decided to take advantage of a weekly $20 food and beverage gift from one of the local Clubs, the club where I usually spend my Wednesday respites. I decided we would park in the Coles area, do a little shopping before walking to the club, she in the wheel chair. After several hundred metres as I turned into the main road into town I noticed her head drooping, one hand in her hand bag. She had gone to sleep, coming to once we arrived at the shopping centre but was not very alert. We deposited a container of coins, the small change I leave for her on the chest of drawers after shopping, in the coin accepting ATM. Her account is just shy of $2000. She was puzzled why a cheque for $99 I banked for her during the week was not shown on the balance slip, I had to explain such would only be shown on a monthly statement. Perhaps I will print that for her if I remember. Then I had her buy a Woman's Weekly at the newsagent, to give her something to read at the club. She was disinterested as we walked around Kmart. Then into Coles to buy some fruit and when asked, she said she had no lollies left at home. Such were added to the basket, then a sticky bun for her from the baker's. In Kmart and on the concourse we twice passed a couple from our village; she doesn't know them really, but showed no interest when I said a few words to them. Before we returned to the car and once out on the street I asked where she preferred to go, club or home. Home was the answer so we arrived there at noon. She placed her lollies in plastic containers then had soup and sticky bun for lunch.

Last Monday I took her up the 4 lane to discuss the matter of cataract operations having made an appointment to see him after she agreed with me to have the job done if she could be convinced that she would be completely anaeshetised during the procedure and her dyskinetics would not be a problem. He assured her that would be the case and stated that both eyes will be operated on at the same time. I resisted saying that one eye at a time may be safer because I have confidence in him and I didn't wish to alarm her. The next day she made similar comments, obviously having churned such matters over in her mind. This coming Tuesday I intend to take the paperwork for her day surgery on 18th September up to the private hospital. Her eye pressures were measured at 26.

For several months now my back suffers pains, especially after being in bed for hours. Several times I have been tempted to see the GP but convince myself the pain is lessening, so there is no need. I blame assisting her in and out of wheel chairs to bed, loo and car to be the cause.

Eventually I received a reply from Abbvie advising me that a cassette of Duodopa may contain up to 1.5ml of air and may cause the bubbles I reported by sending a photograph of a cassette containing bubbles.

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