Chapter 497 - I'm Not Going to Bother Anymore
"I'm not going to bother anymore" I said, quietly, as I walked away. "What about?" or words to that effect she replied. I did not answer, just walked away. Those may not be the exact words, yet close enough to convey the meaning. I can't even remember the straw that caused my statement. I suppose one of her activities in the back room which she has been re-arranging, re-sorting, furniture, drawers, cupboards. Again. That was yesterday.
Last Sunday a routine trip to the shops again. I bought some more shirts, she a sort of "over shirt" which was not quite a jacket, with embroidery on the upper left side, perhaps $10 or $15 (I took no notice) at KMart. She wore it to the Dance for PD class at St Nick's Hall on Tuesday. That afternoon she decided an inner flap that ran down the left side front needed fixing, she became intent on removing it completely rather than sewing it flat. So she picked at the sewn seams with scissors until most of it was loose, the edges in frayed tatters. The next day she made repairs by machine sewing dark grey bias binding, not very straight, on the outside of the jacket. I pointed out that the bias binding did not tone in with the green of the jacket, it should be on the inside. Although she did not agree the bias binding was hacked off. I took some photos in the early stages of destruction of the garment. Just now I went looking for it, finding it in a box; the collar and both the button hole and button panels cut off. There is a "chewed" hole in the lower left hand side of the jacket, which must have been folded under while the removal of the panels took place. In my opinion the item is no longer repairable. She continues with attempts to make something of some plain pink and some floral squares but the patchwork gets so far before it is dis-assembled again; I suspect the pieces are becoming smaller. One small quilt assembled a long time ago had lace hand stitched around its edges and that has been shown to Wild Dog Carers when they visit; I suspect as evidence that she remains capable of such work. They make complimentary noises, I cringe in pity for her.
She unpacked the Lego pieces from a large box bought some weeks ago. The cellophane bags containing groups of pieces have been packed into Tupperware containers. Yesterday the large box was dismembered with a serrated knife and the pieces packed away somewhere. No attempt yet at making the rather complex models; modern day versions of doll houses I think.
I have a day visit to the local hospital next Wednesday and since I need to be there at 0700, I simplified the morning dose rates on her pump by eliminating the short 6.0 mL/hr period which I had thought may be a better Morning Dose but was more of a chore that was easily forgotten.
Following are some FitBit Charts for the past week. The numbers on the hand drawn horizontal lines are dose rates in mL/hr from the Duodopa Pump. The FitBit is attached to her right leg.
Monday 6th August: Dance for PD while watching the DVD followed by some mild physio by Wild Dog Carer 1115-1200
Tuesday 7th August: Live session of Dance for PD at church hall 1000-1200
Wednesday 8th August: No activities of note.
Thursday 9th August: Attended the sewing circle at our village hall 1000-1330.
Friday 10th August: Mild physio session by Wild Dog Carer 1115-1200
Saturday 12th August: Rearranging chairs etc and drawers in back room and sorting packs of Lego pieces maybe 1100 - 1600.
I only wish I could put my finger on what induces the dyskinesias, what causes one day to be "bad" compared to another? Sometimes she has a "bad" day without much dyskinesia; what does she mean?
Being Sunday I offered to take her on our usual shopping adventure; she declined - I don't know why.
A few days ago she had diarrhea; this morning she took herself to the loo from the wheel chair and while sitting there for ages did an enormous stool and of course "there was more coming" but that was a prolapse matter. And while sitting there she "cleaned" the wheel chair with a tooth brush and tissues. After that she followed one of the Dance for PD sessions on DVD. She thought there was washing to be put away, so I brought in a full washing basket and stuff on hangers. My shopping for medications and a couple of food items will be left for tomorrow morning; if she doesn't wish to go with me then she can wear her emergency call button and stay home on her own.
Last Sunday a routine trip to the shops again. I bought some more shirts, she a sort of "over shirt" which was not quite a jacket, with embroidery on the upper left side, perhaps $10 or $15 (I took no notice) at KMart. She wore it to the Dance for PD class at St Nick's Hall on Tuesday. That afternoon she decided an inner flap that ran down the left side front needed fixing, she became intent on removing it completely rather than sewing it flat. So she picked at the sewn seams with scissors until most of it was loose, the edges in frayed tatters. The next day she made repairs by machine sewing dark grey bias binding, not very straight, on the outside of the jacket. I pointed out that the bias binding did not tone in with the green of the jacket, it should be on the inside. Although she did not agree the bias binding was hacked off. I took some photos in the early stages of destruction of the garment. Just now I went looking for it, finding it in a box; the collar and both the button hole and button panels cut off. There is a "chewed" hole in the lower left hand side of the jacket, which must have been folded under while the removal of the panels took place. In my opinion the item is no longer repairable. She continues with attempts to make something of some plain pink and some floral squares but the patchwork gets so far before it is dis-assembled again; I suspect the pieces are becoming smaller. One small quilt assembled a long time ago had lace hand stitched around its edges and that has been shown to Wild Dog Carers when they visit; I suspect as evidence that she remains capable of such work. They make complimentary noises, I cringe in pity for her.
She unpacked the Lego pieces from a large box bought some weeks ago. The cellophane bags containing groups of pieces have been packed into Tupperware containers. Yesterday the large box was dismembered with a serrated knife and the pieces packed away somewhere. No attempt yet at making the rather complex models; modern day versions of doll houses I think.
I have a day visit to the local hospital next Wednesday and since I need to be there at 0700, I simplified the morning dose rates on her pump by eliminating the short 6.0 mL/hr period which I had thought may be a better Morning Dose but was more of a chore that was easily forgotten.
Following are some FitBit Charts for the past week. The numbers on the hand drawn horizontal lines are dose rates in mL/hr from the Duodopa Pump. The FitBit is attached to her right leg.
Monday 6th August: Dance for PD while watching the DVD followed by some mild physio by Wild Dog Carer 1115-1200
Tuesday 7th August: Live session of Dance for PD at church hall 1000-1200
Wednesday 8th August: No activities of note.
Thursday 9th August: Attended the sewing circle at our village hall 1000-1330.
Friday 10th August: Mild physio session by Wild Dog Carer 1115-1200
Saturday 12th August: Rearranging chairs etc and drawers in back room and sorting packs of Lego pieces maybe 1100 - 1600.
I only wish I could put my finger on what induces the dyskinesias, what causes one day to be "bad" compared to another? Sometimes she has a "bad" day without much dyskinesia; what does she mean?
Being Sunday I offered to take her on our usual shopping adventure; she declined - I don't know why.
A few days ago she had diarrhea; this morning she took herself to the loo from the wheel chair and while sitting there for ages did an enormous stool and of course "there was more coming" but that was a prolapse matter. And while sitting there she "cleaned" the wheel chair with a tooth brush and tissues. After that she followed one of the Dance for PD sessions on DVD. She thought there was washing to be put away, so I brought in a full washing basket and stuff on hangers. My shopping for medications and a couple of food items will be left for tomorrow morning; if she doesn't wish to go with me then she can wear her emergency call button and stay home on her own.
posted by Kilpike | 12:40 pm
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