Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Friday, April 27, 2018

Chapter 488 - Chapter Without a Title

Some days ago I began another A5 size 300 page notebook to record our daily happenings; this last noting daily medications and notable events between 11 November 2017 and 20 April 2018. Taking notes each day prevents me duplicating medications and various Duodopa pump adjustments, although I am finding it harder to remember to make notes immediately so sometimes I need to seriously puzzle whether both action and noting have not taken place. She tends not to remember either; such activities are an annoyance to her. Writing the dates and times is an advantage for me to keep track of time, advancing far too quickly these days. Also, without a few daily notes to guide me my waffling in this blog would be very difficult.

The evening of 16th April I experienced another "turn" as I did when we holidayed at Border City. At 1815 I lost my sense of balance without being dizzy and within 30 minutes I was kneeling at the porcelain, going through the motions without actually vomiting even though I had recently eaten a meal. Then I used her walker in order to have things ready when the Wild Dog carer arrived. The Wild Dog carer suggested I use, and then retrieved for me, the collapsible wheel chair from the car. Then between 1945 and 2115 with my feet up on my bed, seated in the wheel chair, I slept, waking feeling reasonable so into bed. Next day using the referral I had from the doctor following the previous experience I had a CT scan of my left ear area which turned out to be  clear when I saw the doctor several days later. He said if it happens again for me to try to get to the hospital for an ECG etc then I will be referred for MRI scans, especially for the back of my head. And so the problem arises of how she will be cared for when I need to make an unplanned visit to the hospital, especially late at night when Duodopa pump matters prevent a Wild Dog Carer from being available. Also doctor I. gave me Noxicid tablets for "heart burn" I was experiencing; now gone, except for those mornings when I forget to take the pill.

Her bowel motion problems seem to have eased; lately I recall fewer issues with encouraging her to get off the loo after being seated for a long time and only having dropped a few pellets. Since she last filled her pants attempting to get to the loo I have not given her Coloxyl. Unfortunately for the Wild Dog carer looking after her during my "respite" last Wednesday, the same mess occurred, so that day she had two showers.

The following day she began making a small pillow from something she had chopped up; then "to hold it all together" she said, she began to stitch large X's in rows around the pillow. The first few rows were barely reasonable  but as she progressed towards the other end the stitching of each row worsened until the two lines of each X did not cross. Once the rows were completed, she realised something was wrong so scissored away the worst and restitched, but not very well. And the sizes of the X 's varied greatly. Most definitely not the quality of the hand embroidery she did 60 years ago! Watching her stitching reminded me of a documentary I once watched of a spider spinning a circular orb that began well enough then became disordered as the spider continued spinning. I can't remember what was said to be wrong with the spider. Anyway, in this case some pics for Dr F.

She was interested for a short while to solve crossword puzzles on line but lost interest. Yesterday she bought another book of puzzles. Last time did I mention buying her a box of 1000 non-Leggo blocks? She said they did not fit together very well the only time she used them. So the other day I had her select two boxes of genuine Leggo ($100!) at Kmart but she has not attempted to build anything yet. She finds reading Mills & Boon novels too difficult so when she asked about audio books i retrieved her Samsung tablet, installed to Kobo application and downloaded my Kobo library to it then a couple of Maeve Binchy novels which she finds  too complicated so stooped to downloading some Mills & Boon, although there are not many available as audio books. Once out on our back patio she "digs" the raised garden bed with her fingers, pulling out weeds and anything she does not recognise so on Sunday we will buy at least one raised planter box in which she can plant things at her whim.

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