Chapter 433 - Heading Where?
She has difficulties getting ready on time; when I attempt to have her have her clean her teeth, pack her craft bag for respite she simply says "I will" then continues her current activity. I have decided not to "push" but let her do her thing, as this morning, she was ready over half an hour late to get into the car, and that may take 10 minutes or more; so today she was over 3/4 of an hour late at Respite, enough for them to call me on my mobile to ask whether she was coming as I pushed her wheel chair in the door. I have seen children in an activity say "I will" when asked to do something, then do nothing about the request. Drives me to distraction; whereas repeated toilet needs, pain, discomfort, needing items out of reach, buying tasty morsels at the supermarket, none of these bother me, instead giving me feelings of encouragement and being needed.
Last Wednesday. her other respite day, I left her to her own devices to get ready. When I checked at 10AM, the time to be there, I found her re-potting a plant in the kitchen sink, a plant given her last year by her sister. She had the plant in a pot of water, the soil in another, no larger pot to place it into and no soil to go with it. Also a flower arrangement given for her birthday had some greenery removed from it with the intention of growing the leaves and sticks in a pot. She had the wheel chair parked at the end of the kitchen at the sink from where she has difficulty backing out. So I grabbed the handles of the wheel chair and shook it vigorously. As I did so, the thought went through my mind that this must be similar to "shaken baby syndrome" when sleepless parents are unable to tolerate any more. My actions frightened her; and worried me. I tried to make an appointment to see the lady I regularly spoke to about matters last year; she is on leave at the moment, returning in about a week. Feeling guilty I went to the local hardware shop and bought two suitable pots to replant the the plant in one, the leaves and green stuff in the other.
I continue placing the FitBit on her right leg. The start and stop times of her dyskinesias are not synchronised to anything as far as I can tell.
Enough of this. I need to go to bed.
Last Wednesday. her other respite day, I left her to her own devices to get ready. When I checked at 10AM, the time to be there, I found her re-potting a plant in the kitchen sink, a plant given her last year by her sister. She had the plant in a pot of water, the soil in another, no larger pot to place it into and no soil to go with it. Also a flower arrangement given for her birthday had some greenery removed from it with the intention of growing the leaves and sticks in a pot. She had the wheel chair parked at the end of the kitchen at the sink from where she has difficulty backing out. So I grabbed the handles of the wheel chair and shook it vigorously. As I did so, the thought went through my mind that this must be similar to "shaken baby syndrome" when sleepless parents are unable to tolerate any more. My actions frightened her; and worried me. I tried to make an appointment to see the lady I regularly spoke to about matters last year; she is on leave at the moment, returning in about a week. Feeling guilty I went to the local hardware shop and bought two suitable pots to replant the the plant in one, the leaves and green stuff in the other.
I continue placing the FitBit on her right leg. The start and stop times of her dyskinesias are not synchronised to anything as far as I can tell.
Enough of this. I need to go to bed.
posted by Kilpike | 9:23 pm
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