Chapter 427 - An Experiment
Beginning last Sunday, 31st August, I have had her not restart the Duodopa pump following the usual 1/2 hour down time for her morning shower etc.
Day Pump Stop Period Hours Time when Dyskinesias Began
Sunday 1.5 1715
Monday 2.0 1700
Tuesday 2.3 1925
Wednesday 1.8 1715
Thursday 2.5 1800 Felt ill at 1130
Friday 1.5 1745 At Hot Air City to buy ramp for legs
Saturday 1.5 1500 Mild diarrhea and at Respite
Sunday 0.5 for shower & dressing 1600 Two hours shopping then sorting clothes
The pump will be restarted ASAP after her shower from now on. The timings are approximate only but do give an idea of how much of her day is "reasonable".
I priced a safety built to support her on the Sara Stedy; $190 for a simple belt to discourage falling backwards, about $500 for a well padded safety belt with a waist belt built in. We will not proceed at this time, While at the disability shop in Hot Air City we bought an adjustable foot/leg stool which is really a ramp to support her legs while seated in the wheel chair, rather than piling up pillows and using her recliner to do the job; $190.
On Thursday we were told to make contact with any future concerns or if the cast for her left foot needs replacement. It is thought that no further improvements to her left foot will happen, to continue with exercises and keep in touch should there be any changes. About the latter we will see what happens when the effects of the Botox injections fade. I have asked Wild Dog Carers to provide another exercise session each week, for a total of three; Mondays, Tuesdays and Fridays.
She is experiencing swallowing problems again, unable to swallow capsules large or small and large tablets (all of these are vitamin supplements recommended by our GP). Our chemist advised it was OK to crush the tablets so I bought a pill crusher so the resulting powder is placed in her breakfast fruit juice along with Movicol.
When she saw our GP last he asked whether she eats much meat, protein. So I am giving her kebabs, meat pies, sausage rolls, various pre-packed meat dishes and chips. Probably not a healthy diet but the aim is for weight gain.
I took her shopping this morning; there were a few minor items we needed but then after buying some clothes, several aprons (to cover her clothes when eating or cleaning her teeth), an elongated pillow that she hopes to make bed time more comfortable, dust pan and brush, a coffee and a hot chocolate we depleted our funds by $330. We both enjoyed the experience!
Day Pump Stop Period Hours Time when Dyskinesias Began
Sunday 1.5 1715
Monday 2.0 1700
Tuesday 2.3 1925
Wednesday 1.8 1715
Thursday 2.5 1800 Felt ill at 1130
Friday 1.5 1745 At Hot Air City to buy ramp for legs
Saturday 1.5 1500 Mild diarrhea and at Respite
Sunday 0.5 for shower & dressing 1600 Two hours shopping then sorting clothes
The pump will be restarted ASAP after her shower from now on. The timings are approximate only but do give an idea of how much of her day is "reasonable".
I priced a safety built to support her on the Sara Stedy; $190 for a simple belt to discourage falling backwards, about $500 for a well padded safety belt with a waist belt built in. We will not proceed at this time, While at the disability shop in Hot Air City we bought an adjustable foot/leg stool which is really a ramp to support her legs while seated in the wheel chair, rather than piling up pillows and using her recliner to do the job; $190.
On Thursday we were told to make contact with any future concerns or if the cast for her left foot needs replacement. It is thought that no further improvements to her left foot will happen, to continue with exercises and keep in touch should there be any changes. About the latter we will see what happens when the effects of the Botox injections fade. I have asked Wild Dog Carers to provide another exercise session each week, for a total of three; Mondays, Tuesdays and Fridays.
She is experiencing swallowing problems again, unable to swallow capsules large or small and large tablets (all of these are vitamin supplements recommended by our GP). Our chemist advised it was OK to crush the tablets so I bought a pill crusher so the resulting powder is placed in her breakfast fruit juice along with Movicol.
When she saw our GP last he asked whether she eats much meat, protein. So I am giving her kebabs, meat pies, sausage rolls, various pre-packed meat dishes and chips. Probably not a healthy diet but the aim is for weight gain.
I took her shopping this morning; there were a few minor items we needed but then after buying some clothes, several aprons (to cover her clothes when eating or cleaning her teeth), an elongated pillow that she hopes to make bed time more comfortable, dust pan and brush, a coffee and a hot chocolate we depleted our funds by $330. We both enjoyed the experience!
posted by Kilpike | 6:00 pm
0 Comments:
Post a Comment
<< Home