Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, November 02, 2014

Chapter 364 - Not Strange, Just Weird

Last Wednesday around 2:45AM she got out of bed to use the commode (nappy pants no longer the preferred option for the previous few nights) and to take 2AM meds. I was already awake. On completion she stood motionless beside her bed, when I asked what her problem was she said "I'm trying to work out how to get back into bed". So I got up and held her arm to help her into bed. Once laying down she explained that she had been confused by the grab handle hanging from the monkey bar over her bed.

The next night she reverted to relying on incontinence pants. The Apo pump was changed over and she took normal meds at approx 10PM, then neither of us woke until 5AM when I heard her rattling her pill bottles and taking the med she should have taken at 2AM (naughty). This is the FIRST time we had both slept through the night without interruptions in ages. Neither of us know why. She did about 150 ml in her incontinence pants during the night (calculated from the weight). She had used the commode before going to bed and about 5:30AM in the morning. She took her next meds at 6:30AM.

During the past week I have encouraged her to take 2 Panamax on going to bed so as to ease any pain in her legs, treating discomfort before it becomes pain. Then each morning I apply Tiger Balm oil to her hips and lower back before massaging the areas with a vibrator. Our house has taken on the odour of old ladies; our cleaner opened the bedroom windows on Friday "to let in some fresh air", obviously my leaving the front door ajar and the laundry door open is not sufficient. Is it our imagination that her leg/foot problems have reduced as a result? Who cares so long as we both think so. I have also vibrated the soles of her feet. Twice this week I needed to support her as she pushed her trolley from the bedroom to the kitchen table; her left leg failed, causing her to to hobble along as if she had a thorn in her foot.

Something weird with her eyesight last evening. I was watching a crime thriller on TV; unusually she was watching as well (she prefers not to watch anything stressful), when she mentioned she had scratched her right leg. I saw slight red scratches and spots to which I applied some anti-itch cream. Then later she made the comment that there were two groups of 3 yellow balls in front of her, disappearing when she removed her glasses, returning when replacing the glasses. Same effect with another pair of glasses. We cleaned both pairs of glasses to no effect. Then a short time later the spots disappeared.

Last night she wore incontinence bloomers to bed, the commode was left in the bathroom, and she slept through until 5:45AM, having missed the 2AM meds. The bloomers were dry. We both feel more alert this morning.

I would feel so relieved to learn that we were doing something positive, rather than simply stumbling about in the dark.


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