Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Monday, October 22, 2012

Chapter 268 - Some Changes Uncontrolled

Yesterday, Sunday, while I wrote the previous post, she rose, showered, dressed all by herself. Neither of us can remember what time in the morning this activity occurred  She thinks maybe 0830 or so. Some days earlier I discontinued writing notes in the diary.

So what's different about today?

To begin with, yesterday I swapped the mattresses between our two beds; hers had the special one that molds to the shape of the body, bought maybe 3 years ago (somewhere in this blog there will be comments about the purchase) whereas as mine is a firm one possibly bought before we moved to this town (her matching mattress is stored up in the roof). The second hand car sales persons that work in bedding shops would have one change mattresses every few years, but then I suppose they have a need to feed their kids.

Recently she has been complaining that she sinks into a "hole" in the "special" mattress, that such prevents her turning. So rather than bring her other one out of the ceiling I just swapped mattresses yesterday morning. I slept OK on the "special" one; yes, it does have a "hole" but that is simply the manner it which it folds around the body at hips & shoulder.

About 1930 last night she wished to post a birthday card to our favourite daughter-in-law and volunteered to walk up to the post box in our village hall. She walked there & back, I suppose 1/2km without difficulty.

We were in bed about 11pm last night, I think she went to the loo once before midnight. I had positioned the commode at her bedside as usual these last weeks. Sometime around 0230 she woke me to help her out of bed; she went to the loo rather than the commode I discovered this morning when I rose, earlier I was in a fuzz, not having a clear memory of the event. She assures me that was the only time she went.

About 0800 she came out pushing her trolley while I was beginning my Wii hula hoop exercise. After finishing I invited her to do some stepping, she was only capable of about 200 steps, needing to sit down. I made her some toast then she became lost in concentration with an amusing felted hat she is making for Melbourne Cup celebrations at her sheltered workshop. Forgot the time, time for a shower, now 0930, needed the chair in the shower, after some short time on the loo where her bowels are working better (a large teaspoon of Metamucil in her evening fruit juice I suppose after the pain killers have clogged her), after the shower she called on the CB needing help to stand & complete drying, trolley into the bedroom, sitting on the side of the bed dressing but unable to stand again to pull up her incontinence pants, which I stressed too much and ripped. She will change them before going up to another Bowen appointment. Those damn pants are expensive; fortunately she is subsidised for purchasing them & I bought a large number at a discount a week ago on line.

She is now dressed, back to working on the hat, No pain while seated, left leg has pain when she stands but goes after a few steps. Another day, another week.

0 Comments:

Post a Comment

<< Home