Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, December 12, 2010

Chapter 208 - Pain Unending

On Monday about 5am she woke me by calling my name. She rarely wakes me during the dark hours. She needed to go to the loo but the pain in her hips & back prevented her shuffling to the bathroom. She asked me to bring the commode from the 2nd ("my") bathroom where it is stored in the shower recess. I suspect she prefers not to use the commode because such an object is a symbol of debility.

Wednesday morning I was out in my dungeon without music playing, otherwise I would not have heard her call for help from the end of the hall near the bathroom. I had left my CB radio in the family room and anyway she was unable to reach her trolley where her CB was hanging on one of the handles. There she was grasping the corner of the wall with both hands, white knuckles, stooped almost horizontally. When I reached her she said plaintively "I'm stuck."

One night, I forget which, while sitting on the side of her bed, she asked for help to swing her legs up & onto the bed so that she might lay on her back for awhile.

She has been applying the TENS across her lower back & legs. Frequently asks me to help her onto the treadmill.

The expensive mattress we bought a couple of years ago, the one that moulded itself to the shape of the body, was very good for her at first but over time she began to complain of a hollow into which she sank and we think the hollow has aggravated her hips & spine to give her so much pain. The mattress is one sided, so it cannot be tipped over, only reversed end to end which is of no benefit since the hollow is in the centre. So I have retrieved her old firm mattress from the ceiling loft. She has found it comfortable. The newer one is presently in the middle of the lounge room floor.

Yesterday, Saturday, again she called me. This time dripping wet, stooped horizontally, gripping one of the rails in the bathroom after a shower. This time we both had our radios but hers she could not reach because it was on the other side of the bathroom. "I shouldn't have washed my hair" she said, since doing so always requires too much effort. I dried her, helped her into the bedroom and dressed her. We need to change our approach to the problem; seems our radios are not always the way out of a difficult situation.

Also yesterday she made the effort to ring a Bowen practitioner in a little town half an hour north of here. We don't have one in our town any more. An appointment was made for tomorrow. I hope this woman sticks to simply the Bowen procedures and doesn't include all the other manipulation activities.

Just I heard her boot up the Wii but the familiar notes soon stopped. She called that she wanted the treadmill. As I helped her onto the treadmill I queried how much Wii she had done "The treadmill does me more good." After about 5 minutes I helped her off the machine, breathless.

A few days ago she decided to adjust her meds regime to 3 hourly. I haven't noted the details yet.

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