Chapter 149 - A Flat Week

At a little after 9am this morning she has just woken. I make some notes about last night, a blur to me although I know she was sitting outside for some of it. I have taken to recording daily notes again so that we can track changes even if some are not understood on later reading. Last night for instance, after going to bed at 11pm she woke uncomfortable 30 minutes later and to the loo. She says that when discomfort wakes her then the effort in attempting to reposition her body triggers a need to urinate; so loo visits at 0:30, 2:30, 4:30 and 5:10; the latter when she called me to help her out of bed because she was too stiff. She then sat outside to take her 6am meds and breakfast a little later before returning to bed at 7am. We are contemplating her again taking some meds prior to bedtime. Her, on average, two trips to the loo during the day suggests to her that she has nothing else wrong. Each night time this week has been similar to the forgoing, sometimes she sits outside earlier and longer.

Some highlights during the week. On Monday the dressings on her leg were replaced and after returning home she slept for 2.5 hours. Tuesday I decided to take a country drive about 60kms to buy some photo frames at a shop that I found had closed for good so we compensated by an expensive yet tasteful lunch in the cafe attached to the local wood crafts display shop. The trip tired her. She was feeling dippy by lunchtime on Wednesday so slept for a couple of hours. Attendance at our local PD group followed by another change of dressings filled our Thursday. We saw the latest Richard Geere (spelling?) movie Friday afternoon. We completed the week with afternoon tea around the corner with our friends. As you can see, I am attempting to have her involved in an outside activity each day rather than simply sitting in the house. She continues to do her puzzles but little computer activity and no embroidery at all. On Saturday she double checked a document that I had proofed and found several discrepancies which I had missed.

Each alternate day she dons the plastic legging to have a shower on her shower chair. I need to help her. Most evenings I insist we walk at least part way to our village hall, rest on a bench then return home. Last evening she wished to post some letters so we went all the way to the hall - she was out of breath on arrival there and on our return home.

She has begun reducing the Inderal, so for some days now she has had 1x Sifrol and 1x Sinemet Cr at 6am, 12 noon & 6pm but Inderal only at 6am 7 6pm.

She was fed up with the PD meditation voice on the MP3 so I replaced it with plain meditation music tracks which I have not been able to encourage to play continuously, now she wants the PD material back again. My job for today.