Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Tuesday, November 13, 2007

Chapter 110 - Going Down the Other Side

The seasons are changing again in our little world of PD. This morning, dripping wet after a shower, she called me to dry her. I had her grasp the fireman's pole up high so that she stood upright. Then I helped her to the bedroom where I pulled on her undies & jeans while she was seated on the side of the bed. And clipped her bra. She managed her shirt & slip-on shoes. "I had a bad night" she said "My feet wouldn't stay in bed." Seems a long time since she said that. KYB day and she skipped attending.

Analysis time.

We have not been walking down at the park.

Last Saturday we attended a matinee performance by a local theatre group (our local GP always has a prominent role) of "Pirates of Penzance". I had bought tickets for ourselves & friends in the front row, my seating preference, but also to easily position her director's chair she prefers for comfort & stability. The theatre is within the grounds of our local but defunct mental asylum. She mentioned later that the performance caused her stress when her tremors failed to synchronise with the music from the orchestra pit (directly in front of us), instead becoming irregular & uncomfortable for her (more than usual). Also, being in the front row of seats in her own chair placed her on display, contributing to her stress. In re-checking my notes I recorded that she was very shaky after her shower Saturday morning and requested the TENS machine on her lower back.

My cousin who lives in the little "town" (a handful of houses, pub, a couple of defunct churches, a restaurant in a converted mill and a recently opened country cafe) a few kms beyond the spud growing town had called me to remind me that her country garden was on display over the weekend, that her dear 90 something mother was visiting. Sunday was a perfect day for an excursion out there with friends. We sat for quite awhile beneath the shade of a garden umbrella while we had a light lunch at the country cafe. She delayed the meds, usually taken at 2pm, to 2:45pm to avoid the protein of lunch. After lunch we crossed the street to view the cousin's garden; well I chatted to my cousin's mother, our friends strolled the garden and she sat comfortably on a garden seat.

Yesterday I was involved in an embroidery project then entertained by for most of the afternoon by a visiting friend from the other side of our village, so I failed to note any problems.

Our bedtimes have drifted closer to midnight. I have not forced green tea upon her as often as I had.

I am concerned for her next Friday night. I bought tickets for a fruity melodrama production out at the spud growing town, transport by a local bus hired for the occasion. Those productions are always noisy, crowded, and everyone takes heaps of food & any other BYO items to consume between acts. Maybe we should not go.

An added note. After showering & dressing herself Monday last week she called me that a large tarantula was above the bedroom curtain. I got up on some steps, looked all over the curtains, brushed the curtains inside & out without finding any hairy monster. She said when halucinating more than one spider is seen. I don't know. Later that day she was very shaky and her balance was poor. Perhaps the next morning, I forgot to note, she told me she saw & stomped on a spider in the bathroom. Later I found a large dead sugar ant on the bathroom floor. When I showed it to her she thought that was what she saw without glasses .

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