Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Saturday, September 01, 2007

Chapter 103 - Early Morning Darkness

It's now 5:40am. I have been awake now about an hour & a half. She says she rose at 3am. I didn't hear her. I did the same about an hour later, returned to bed remembering a circular list of "Things to Do", not written down, that keep me awake. She wakes at 5am needing to rise to get back into bed so that her feet "don't hang out". I help her. Soon she is snoring comfortably yet softly so I decide to quietly leave the bedroom and type this chapter. "Are you sitting on the side of the bed. Are you going to the loo?" "No" I growl, irritated that I woke her. "I need help to turn over." "You know this never works!" "I just need my knees lifted, then I'll grab the pole." In the dark the bedclothes obstruct the procedure, she has trouble grasping the pole, she turns, I draw the bedclothes up again. I switch on the CB radios then stumble away. I hope she is sleeping again.

Her ability to walk in the park has been improving. When we first began she developed back or hip pain within 5 minutes yet on Thursday we must have walked at least for 20 minutes, partly up a gradient, to have her slightly out of breath when we returned to the truck. Yesterday we did not walk; yesterday was a bad day, along with the weather.

This week we twice visited the PEMF practitioner out at Spud Town. I really have no idea whether the "therapy" is doing any good. Holding induction coils against her head & body scares me a little, even though there is no discomfort. Although yesterday I was concerned about her safety until she pointed out that she felt much as she had on the Saturday of the wedding, so perhaps this is what I should dread. This is how yesterday unfolded; several times out of bed for loo & errant feet in the early hours, then between 5 & 6:30am she had to sit in her favourite chair until she could return to bed to sleep soundly until 9am when I woke her for meds. She felt "awful" so returned to bed to sleep until 10am. Again I woke her, she wanted to sleep. She was still sleeping an hour later when I checked yet 15 minutes later she rose & showered and within a short time had dressed herself, except of course the harness with little clips. Her tremors were bad, and more so during the afternoon. Once she CB'd for help to raise her clothes in the loo, another time she needed assistance to rise from her chair; she said she felt weak. Late in the afternoon her chest was "tight" & her stomach was "churning". Beyond 7:30pm she began feeling better; even threw some clothes into the washing machine and at 10pm she said she was back to normal.

So perhaps yesterday had nothing to do with the PEMF of the day before. Yet I hope days like yesterday & the day of the wedding don't occur too frequently. Two days like that are not a trend. I am listing the mornings she is able to dress herself as an indication of whether the PEMF is having a beneficial effect upon her. So far, no. I gave a copy of the list to the PEMF practitioner, who agreed that so far there is no trend.

Tomorrow we leave for a PD conference in that little town that once had a POW prison. From there we meet up with friends to caravan aimlessly about the country side for a couple of weeks. Posts to this blog will probably not happen until our return.

Time for breakfast and then a thousand tasks.

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