Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, November 26, 2006

Chapter 64 - Drifting

Following her last KYB meeting for the year last Tuesday, we made another visit to the hot air city; again so soon, a bad habit. This time because she found that her successful embroidery of some towels the previous week was hampered by the difficulty of moving her chair between her PC and her embroidery machine. There was only a hard plastic mat (rather badly cracked) in front of the desk, so rolling the chair off that onto carpet was hard for her. She had found that she was able to cope with threading the machine from a single spool stand rather than from the larger, multi-spooled device above the machine. That is, she was able to remain seated. Wishing to encourage her, I decided we needed two new mats, one at the PC and the other at the embroidery machine. This time we bought more expensive mats, (with a few other necessities, $300 worth) hopefully they won't crack too soon, and they overlap slightly in the middle of the room, giving her a reliable raceway from one side of the room to the other. Not that she races. Since then she has composed a design and has stitched it out onto several stock linen doily things. Hooped in the large Giga-hoop we have had for a long time but never used. She figured out how to edit and layout the design without my help. Most encouraging. Although this activity does aggravate the pain she currently has in her arms.

Most mornings she needs help drying and dressing after showering. Most afternoons she sleeps for an hour or so. Not today; she is asleep in her chair as I type in the evening. Yesterday we had planned to attend a friend's 60th birthday party in the steel city; we didn't go; she had disturbed sleep until around 4am and she was not keen to socialise at a party. We have made plans to visit the friends on the weekend after next.

A few nights ago the king of the free world (diminishing tenure thank goodness) was on a news clip extolling the freedom and democracy he has to give to the peoples of the world. Such clips are shown simply to irritate me. I yelled at the TV "And you are a dick-head!"; I don't remember ever having caused her to laugh so much. I was astonished. Am I so funny?

During the week she read an article in a PD newsletter that meds should be taken two hours before or one hour after meals. So now we have our main meal in the middle of the day and so far she seems to forget about breakfast and in the evening we nibble something. So our timetable is something like this:

0600 1 x Modopar Rapid
0700 shower, but maybe later
0900 1 x Sinemet CR, 1 x Inderal
1000 maybe a nibble for breakfast?
1200 main meal as lunch
1400 1 x Sinemet CR, 1 x Inderal
1900 1 x Sinemet CR, 1 x Inderal
2000 maybe a nibble for dinner?
2200 1x Deralin
2400 1 x Sinemet CR, 1 x Inderal

Should be both keep this up we may both lose weight if we avoid the nibbles. I find my appetite wains when I have to prepare food around 1130. Today a couple of snags with vegetables. My gut churns at the thought. Lunch at a restaurant never bothers me though. She wondered whether we should stock up with frozen dinners. We are definitely becoming a couple of old farts. Do you remember the movie version of "Iris", John Bayley's book? (A biography of his wife Iris Murdoch.) Well, we don't yet have tinned food cans laying about but maybe we are trending that way.

0 Comments:

Post a Comment

<< Home