Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Tuesday, November 14, 2006

Chapter 62 - Scary

"That was scary last night" she said in reply to my comment that she was walking well this morning. She had showered and dressed herself about an hour after taking her early morning start-of-the-day Modopar Rapid. But she decided to crawl back into bed for awhile.

It began yesterday morning with her having a blood test at the pathology place. The vein in her left arm had to be used, the vein also used for dye injection for the CT scan last week. The result was bruising and a lump where I imagine there has been some leakage. Then in the afternoon she began preparations for an embroidery project (this will be her first effort in many months). She called me on the CB - anywhere she moved in her sewing room forced her into a corner where she became "stuck". By the time I cleared the room of unnecessary boxes, put things away and generally cleared the place she was beyond being able to commence the embroidery. Another day, except the task is to be completed by Saturday. In the evening she typed her KYB lesson.

At one point she needed me but I had left my CB behind. I found her standing twisted, holding onto a shelf of the wardrobe in the sewing room. She was stiff, afraid to move. Afraid.

She needed more help than usual rising from her chair. Several times I needed to lead her towards the bathroom. She needed to grasp the doorways as she passed through.

Then, just before midnight, she attempted to undress in the bedroom. Couldn't do so, because she needed to hang on with both hands to the wardrobe shelf (she finds them useful supports). She was afraid of falling. Her stiffened arms made removing her clothes very difficult, especially when her hands kept grabbing the shelf. Similar problems attempting to dress her in her pajamas. This is the first time I have needed to undress her, except occasionally a bra clip (you know those little wire things at the back). She behaved as though she was on the edge of a tall building, afraid of the height and needing to hold on from fear of falling. Reminded me of the episode of Mr Bean on the high diving board, although here it wasn't funny. Later, around 2am while I slept, she was wide awake, unable to lay still, needing to turn from side to side and doing that easily, which is never the case normally. That lasted about an hour.

At 8:45am she poked her head into my dungeon, bright eyed and chirpy.

Where are we coming from, going to? Yesterday evening she was obviously under-medicated, in the middle of the night obviously over-medicated. I suspect these extremes are moving closer together. Expletive deleted.

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