Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, July 11, 2021

Chapter 600 - I'm Not In The Mood To Write

 So why am I writing? Simply to remove my feelings of anxiety for not recording anything.

I have a piece of tape on my nose where a biopsy sample was removed a couple of days ago when I presented myself to a dermatologist at Ring surgery (where we go now); no hesitation, wanted to do a whole body check but there was no time for that because I needed to get home and relieve the carer. I was asked whether I wanted the work done down in Hot Air City or in a southern suburb of Big Smoke (supposedly a better surgeon there) so I chose the latter, not a good choice now that COVID is marching south. Maybe the biopsy will be negative. The dermatologist was not impressed when I told her the previous GP told me the "bump" was not a nasty and a small tube of cream he gave me would fix it.

She continues to have bouts of sleep most days for several hours. Today from 1100 to 1430 and had needed a cardigan and her grey blanket while sleeping with her feet up in her wheel chair. After a late soup lunch plus a Movicol (for today no motions yet) and Benefiber in OJ dyskinesia began so I placed her on the pedal machine.

I have noted that when her bowels are properly functional, her dyskinesia tends to be less and she feels the cold more and needs are cardigan while up and the grey blanket over her in bed.

Our Enduring Guardianship documents have been placed in the care of our solicitors. I sent an email to tell the woman who scared the hell out of me at the hospital that everything was in order, only to have an automated response advise mr that the woman no longer worked for the Health Department. Anyway, something now out of the way. I will take the certified copies of our Enduring Powers of Attorney for safe keeping, our Wills as well, although both sets of originals for both sets are at the solicitors in Hot Air City.

Our Financial Advisors sent documents to be completed before they begin to plan how best we finance Residential Care for one of us. I had thought this action was a matter of advance planning but my biopsy business may initiate action on this front sooner than I had hoped. I broached the subject with her today and found her disinterested in the matter, obviously not seeing the ramifications of our paying someone to advise us how to go about paying for Residential Care.

I must stop typing, the muscles in my right fore arm are killing me.

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