Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, June 24, 2018

Chapter 491 - Further Complications

Last things first. Yesterday to Dr I. to talk about her motion passing problems, armed with an image I took last Sunday. That day after putting her onto the toilet at 0915 she refused to get off, from time to time dropping small marbles, until at 1200 she called me on the CB to help her off; she had given up trying to rid herself of the "more to come" sensation. There were scraps of soiled toilet paper on the floor. I asked her to bend and sit forward as much as possible, intent on seeing what made her think there was "something hanging". Well there was, a bulbous pink ball which I assumed was haemorrhoids. Grabbing my phone, I took several pictures of it. So yesterday Dr I. wrote a referral to a surgeon in Hot Air City (he thought it better not to have anything done in our local town) which states that I "took a picture of the anorectal area which seems [to show] rectal prolapse". He then said to me that without the picture and only hearing our descriptions of the problem he would have said just a case of haemorrhoids; I did not ask follow-up questions about treatment of the prolapse because I did not wish to frighten, deter her from treatment before the issue became more serious. Those hideous hand held computers with a phone application sometimes are useful.

A number of Wednesdays ago we went for a routine PD Clinic at West Beer Hospital. Her day rate was changed to 7.0 mL/hr and the morning rate to 1.0 ml and we were asked to return in 2 weeks time, which is unusual. However I cancelled the appointment because a few days before I began developing a sore throat so the appointment was moved to this coming Wednesday. I did not ask why such an early appointment was required. Last visit I left selected copies of FitBit charts of her right leg dyskinesias with them at the Clinic, this next visit I'll give them daily copies, suitable annotated, for the whole period she has been on 7'0 mL/hr.

Some weeks ago i bought a small non-contact handheld thermometer. Now whenever the are differences in skin temperature between feet, legs, hands or arms I take reading of equivalent areas. For instance, last night at 2325 her left shin was 26.6C, feeling very cold while her right shin was 34.4, feeling very hot.

Recently I find the thought of writing this blog after re-hashing daily experiences in my mind to be very depressing, so I have not written anything, although there are day-day happenings I should record here, even though most things a scribbled into my A5 notebooks, grounding us in reality rather than foggy confused memories. Enough for today; after the doctor visit yesterday we had lunch down town followed by some shopping and we finished the day by watching two movies on-line. She enjoyed the day so we will shop again today.