Chapter 413 - Some Changes
Now that she is on a Level 4 Plan Wild Dog periodically sends a nurse to check on her, the first visit was last Monday. She suggested a spray product, rather than a squeeze bottle of lubricating eye drops. When I checked with the chemist he advised another product that is on the PBS but recommended checking with the eye specialist first.
On Thursday her "shakes" were very vigorous, they have been increasing in duration and magnitude for some time now. Such changes creep up almost without us noticing. She has complained of her legs being very tired. I increased the pump flow rate from 4.8 to 5.0 mL/hour and gave her a bolus dose as well at lunch time. By late afternoon the shakes seemed worse.
The next morning we slept in because I had not set the alarm, her pump was started at 0735 then turned off while Wild Dog assisted her to shower, and that interrupted the Morning Dose so after she was showered and dressed and the pump started again I gave her a bolus dose. At 0920 I reduced the flow rate from 5.0 to 4.6 mL/hour. Her legs were stable until noon around the time the Wild Dog physio had put her through her exercises. By 1700 I rated her leg shakes as "light" but at 1930 when the evening Wild Dog person came to help her to bed the leg shakes were "vigorous". The pump was turned off at 2130.
Saturday I further reduced the flow rate from 4.6 to 4.4 mL/Hour. Too many changes too quickly I know. I took her to respite about 1000 but she called me at 1500 to come home, her legs were shaking too much. Yet at 1530 at home I noted her legs were not shaking.
Yesterday morning, Sunday, she became fascinated by the T-Hub (our phone system), began pressing icons to find out what they did. I heard the thing ringing out, went out to investigate what was happening because our phones were not ringing. She had initiated a call to what I think was a diet company (has a female title) although no one answered. Then a few minutes later one of the Wild Dog people rang to say she had received a call on her mobile from our number; I explained what had been happening. I then took her down the street to buy stuff at her favourite clothing shop, did some grocery shopping and ran out of time to have a coffee. She continues to resist someone from Wild Dog pushing her around the shops on a Sunday morning, while I have a coffee and read a good book, but I'm working on it.
This morning her legs are quiet.
On Thursday her "shakes" were very vigorous, they have been increasing in duration and magnitude for some time now. Such changes creep up almost without us noticing. She has complained of her legs being very tired. I increased the pump flow rate from 4.8 to 5.0 mL/hour and gave her a bolus dose as well at lunch time. By late afternoon the shakes seemed worse.
The next morning we slept in because I had not set the alarm, her pump was started at 0735 then turned off while Wild Dog assisted her to shower, and that interrupted the Morning Dose so after she was showered and dressed and the pump started again I gave her a bolus dose. At 0920 I reduced the flow rate from 5.0 to 4.6 mL/hour. Her legs were stable until noon around the time the Wild Dog physio had put her through her exercises. By 1700 I rated her leg shakes as "light" but at 1930 when the evening Wild Dog person came to help her to bed the leg shakes were "vigorous". The pump was turned off at 2130.
Saturday I further reduced the flow rate from 4.6 to 4.4 mL/Hour. Too many changes too quickly I know. I took her to respite about 1000 but she called me at 1500 to come home, her legs were shaking too much. Yet at 1530 at home I noted her legs were not shaking.
Yesterday morning, Sunday, she became fascinated by the T-Hub (our phone system), began pressing icons to find out what they did. I heard the thing ringing out, went out to investigate what was happening because our phones were not ringing. She had initiated a call to what I think was a diet company (has a female title) although no one answered. Then a few minutes later one of the Wild Dog people rang to say she had received a call on her mobile from our number; I explained what had been happening. I then took her down the street to buy stuff at her favourite clothing shop, did some grocery shopping and ran out of time to have a coffee. She continues to resist someone from Wild Dog pushing her around the shops on a Sunday morning, while I have a coffee and read a good book, but I'm working on it.
This morning her legs are quiet.
posted by Kilpike | 10:54 am
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