Chapter 392 - Trending Downhill
Her dyskinesias have increased rather than decreased with the reduction of the Duodopa flow rate from 6.7 to 6.6 mL/hr. Perhaps her punding has reduced; perhaps I'm growing used to it. I told her that I will return the flow rate to 6.7 if there is no improvement by today, but I have decided to maintain it at for at least another week. For most of this week she complains of being unable to complete a poop, staying on the loo for upwards of an hour. She says there is a "lump" which she can't expel, and is afraid that if she stops trying then there will be a mess in her pants later. Yesterday morning this happened while still on the commode and consequently there was smeared shit on the commode and the loo seat. Yesterday and this morning her overnight bloomers leaked, wetting the satin draw sheet and the waterproof kylie sheet beneath. More washing. Last night I gave her an additional Movicol to see if extra bulking agent may assist her expel the last bit of poop.
Her toes on both feet are sore, very sensitive. A few nights ago she began bandaging both feet in cotton wool and tape on going to bed to stop her feet bumping together while in bed or touching the bed end. Fortunately an order from Pelican for a pair of special fleecy lined boots arrived 2 days ago to relieve the foot and toe pains; she didn't want them because of the expense. Last night one of them was kicked off, although she hadn't noticed, the other one keeping her feet apart.
The swallowing test report arrived in the mail, indicating the nature of the tests and the findings. A soft diet avoiding mixed food consistencies has been recommended. That is, a Single Texture Diet. Obvious I suppose that she must avoid small dry particles, but even lumpy pieces of meat or vegetable within soups and the like. Foods to avoid include watermelon, pineapple, runny sauces or gravy in stews or casseroles (that puzzles me!), obviously any breads, yoghurts etc containing seeds, salad dressings containing garlic. About 90% of what is in our fridge and cupboards is off limits to her!!!
She has attempted to dress a small doll; after pinning pieces of fabric onto the doll's body she began to snip off pieces to shape the fabric; ruined what she had so began again. Several times I think.
Her toes on both feet are sore, very sensitive. A few nights ago she began bandaging both feet in cotton wool and tape on going to bed to stop her feet bumping together while in bed or touching the bed end. Fortunately an order from Pelican for a pair of special fleecy lined boots arrived 2 days ago to relieve the foot and toe pains; she didn't want them because of the expense. Last night one of them was kicked off, although she hadn't noticed, the other one keeping her feet apart.
The swallowing test report arrived in the mail, indicating the nature of the tests and the findings. A soft diet avoiding mixed food consistencies has been recommended. That is, a Single Texture Diet. Obvious I suppose that she must avoid small dry particles, but even lumpy pieces of meat or vegetable within soups and the like. Foods to avoid include watermelon, pineapple, runny sauces or gravy in stews or casseroles (that puzzles me!), obviously any breads, yoghurts etc containing seeds, salad dressings containing garlic. About 90% of what is in our fridge and cupboards is off limits to her!!!
She has attempted to dress a small doll; after pinning pieces of fabric onto the doll's body she began to snip off pieces to shape the fabric; ruined what she had so began again. Several times I think.
posted by Kilpike | 10:03 am
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