Chapter 378 - And So It Goes

Last Tuesday we saw the Trial Coordinator at West Beer.She gave us an overview of Duodopa and introduced us to a couple, he being the one with PD. He had been wheel chair bound and unable to play his piano until he was fitted with a Duodopa pump. His wife, although initially disappointed with the initial results of Duodopa, sings it's praises. Now he is walking with the aid of a cane and is playing the piano once again. He was not very vocal, being quiet and reserved. He stood without noticeable tremor for several minutes while his wife spoke to us. He turned somewhat awkwardly but walked away with small steps, quite well I thought for a man over 80 years.

By the time we arrived home she had decided to proceed with hospitalisation for Duodopa. Seeing the 80 year old had overcome her doubts. Next day I emailed West Beer. We will receive details of appointments in a week or two.

She continues to sweat badly. Her legs and back itch frequently. She tries hard not to rub or scratch those areas. On Saturday she woke me at 0530 because her itchy legs were causing her stress. I rubbed Animine from a little above her knees to her ankles, both legs. At 0600 she took her meds. At about 0645 when her meds kicked in she said with surprise "The itching has stopped!" That convinced me that the "heat rash" I see is just another side effect of her PD/meds.