Chapter 350 - "Most peculiar" she says
In getting my bearings this morning to compose another "essay" in this blog, I noticed in my notes (I keep notebooks from which I have trouble reading and comprehending my impromptu scribbles) for last Sunday after I had posted Chapter 349, the following:
"1420 face going numb 122/72 63 [wrist mounted BP monitor] Stomach 'squirmy', bowels feel active
1430 face still numb toes both feet tingling like mad
1435 leg tremors chin wobbles"
A few minutes later her very good friend (who has MS and a husband with frontal lobe dementia) rang for a long chat and face numbness was forgotten about. Although my later notes record biliousness without vomiting,, blurred vision, wheelchair trips to toilet and return, leg tinglings, fear of panic attack, sleepiness and generally "feeling awful". Face numbness was forgotten about in speaking to GP Dr I. on Monday or neuro Dr FC at West Beer on Thursday (more later on those appointments).
Back to getting my bearings this morning. So I went out to ask her whether she had experienced any more "face numbness". She wasn't sure, referring to various tingles in her head. Then she astounded me by saying "Something most peculiar happened", describing how a little while earlier she had risen from her Rev chair at the kitchen table, pushed her trolley to the kitchen cupboard (less than 6 paces) for some dried fruit to nibble, turned to go back to the Rev chair but instead of proceeding forwards, she shuffled/stumbled backwards until she collided with the bench top/cupboards at the kitchen sink (our kitchen is in the form of a hollow rectangle, the sink at the far end) whereupon she then proceeded forwards returning to the Rev chair at the kitchen table. After seating herself she called me on the CB (I was in the midst of my daily dose of Lumosity) to carry her sewing machine from her sewing room to the kitchen table where she began to sew some bags for Wild Dog Respite, without a word about walking, well shuffling, backwards in the kitchen. If I hadn't asked her about "face numbness" she may have forgotten this incident!
Last Friday another event was remembered and told to me hours later; she stooped to pick up something on the floor of her sewing room, toppled forwards, struck her forehead on her desk. When I inspected her forehead, there were two small slight pinkish areas on the upper right side and may not even have been where she struck her forehead.
Then another incident this morning, Sunday. Before she has a shower, a place an elastic band (which I refer to as her "chastity belt") around her waist on which her Apo pump, in its supposedly water proof sarcophagus, is supported. After showering, the elastic band is usually draped over a towel rail by the Wild Dog Personal Care lady who helps her shower. I later retrieve the elastic band to wrap it tightly around a rung our towel warmer where it flattens and dries for next morning. This morning she decided, for unknown reasons, after being dressed, to wrap the elastic band around the towel warmer. As she did so her left leg gave way, she stumbled sideways, bumping the rubbish bucket and whatever else as she collapsed into the plastic chair kept beside the toilet bowl. A few seconds later, she rose from the plastic chair and pushed her trolley out to the kitchen table for breakfast.
Now to return to the beginning of the week. On Monday a phone call from the GP had us talking to him at 4:15pm about the results of her recent blood test. Her B12 level was about twice as high (1476 pmol/L) as normal (180-740) which he does not believe was due to him giving her the B12 injection a short time before blood was taken for the blood test. He advised Vitamin D be taken at 3000 iu per day for 2 months and thereafter 2000 iu per day for ever because the blood test gave a "marked deficiency" result at < 25 nmol/L rather than 51-200. The blood test also indicated that Antineutrophil Cytoplasmic Antibody (ANCA) was positive, although of no immediate concern. Dr I obliged us with referrals for nerve conduction studies on her lower limbs (21 July) and arterial doppler ultra sound on her left leg (8 July).
Each day this week she has experienced biliousness which seems to begin in late morning but seems to be lessening. Yesterday, Saturday, at Wild Dog Respite, it began about 1pm so today she does not wish to eat any lunch. Last Tuesday at Wild Dog she sat in the foyer from about 2pm because she thought she may have been sick until I collected her at around 3:45pm. Her mobility is much better, although we had difficulty getting her into and out of the car on Monday and Tuesday. Most time she is able take herself to and from the loo. My right shoulder is slowly recovering, and when I remember I rub some Voltaren on it.
On Thursday Wild Dog provided a car and driver to take us to West Beer to see neuro Dr FC, a most thorough doctor. She copied the 70MB or more of PD records I offered her on a memory stick onto her system and when I showed her the printed images of the pink and white soles of my PWP's feet I took last year she quickly snapped them on her mobile; if I'd known I would have provided other images and videos on the memory stick. She wrote scripts for another blood test plus a urine test which were completed on the ground floor of the building as we left; a script for an MRI (18th July) and at a time to be advised an L-dopa holiday and duodopa test. The only problem on the day was the swarthy individual on guard at the gate into the car park that told our driver to let "the old people out near the lift then park over there in that slot". On our way home we feasted at McDonalds. However, today Sunday, she does not want lunch so she can avoid feeling bilious.
Friday I returned to making copious notes when she felt "crook", sleepy, tingles etc. Strangely, she bottles up her problems when with others, as on the trip to West Beer.
Saturday she realised that her speech was slurred as she spoke to the Care lady while showering. I frequently notice this.
For several days now she has felt cold (well it is winter now), more so than expected, so I assume her regulatory system is not controlling her body temperature to be warmer in a similar manner to a few months ago in warmer weather when she tended to be too hot. Last night, even though the room heater had been on she needed a quilt on her bed. On Friday evening she felt "churned up" and cold even with the heater on but 45 minutes later she was so warm she needed to remove her cardigan.
This morning at 4:40am she woke me in fear of a leak in her nappy pants. I found her diagonally across the bed all twisted in the bed clothes. She wanted to get up to sit on the commode. I didn't wish her to. She was quite warm, even her feet. So I straightened her and I think we both returned to sleep. At 7:10am she woke me again (late, since I need to rise earlier to shower, prepare Apo pump, remover her nappy pants, arrange her clothing and incontinence items prior to Personal Care arriving around 8am). She said she had been trying to wake me; she was at the foot of the bed attempting to release the "adult proof" latch on the side rail of her bed. Perhaps she had called me; I had been half asleep listening to snippets on RN since 4:30.
"1420 face going numb 122/72 63 [wrist mounted BP monitor] Stomach 'squirmy', bowels feel active
1430 face still numb toes both feet tingling like mad
1435 leg tremors chin wobbles"
A few minutes later her very good friend (who has MS and a husband with frontal lobe dementia) rang for a long chat and face numbness was forgotten about. Although my later notes record biliousness without vomiting,, blurred vision, wheelchair trips to toilet and return, leg tinglings, fear of panic attack, sleepiness and generally "feeling awful". Face numbness was forgotten about in speaking to GP Dr I. on Monday or neuro Dr FC at West Beer on Thursday (more later on those appointments).
Back to getting my bearings this morning. So I went out to ask her whether she had experienced any more "face numbness". She wasn't sure, referring to various tingles in her head. Then she astounded me by saying "Something most peculiar happened", describing how a little while earlier she had risen from her Rev chair at the kitchen table, pushed her trolley to the kitchen cupboard (less than 6 paces) for some dried fruit to nibble, turned to go back to the Rev chair but instead of proceeding forwards, she shuffled/stumbled backwards until she collided with the bench top/cupboards at the kitchen sink (our kitchen is in the form of a hollow rectangle, the sink at the far end) whereupon she then proceeded forwards returning to the Rev chair at the kitchen table. After seating herself she called me on the CB (I was in the midst of my daily dose of Lumosity) to carry her sewing machine from her sewing room to the kitchen table where she began to sew some bags for Wild Dog Respite, without a word about walking, well shuffling, backwards in the kitchen. If I hadn't asked her about "face numbness" she may have forgotten this incident!
Last Friday another event was remembered and told to me hours later; she stooped to pick up something on the floor of her sewing room, toppled forwards, struck her forehead on her desk. When I inspected her forehead, there were two small slight pinkish areas on the upper right side and may not even have been where she struck her forehead.
Then another incident this morning, Sunday. Before she has a shower, a place an elastic band (which I refer to as her "chastity belt") around her waist on which her Apo pump, in its supposedly water proof sarcophagus, is supported. After showering, the elastic band is usually draped over a towel rail by the Wild Dog Personal Care lady who helps her shower. I later retrieve the elastic band to wrap it tightly around a rung our towel warmer where it flattens and dries for next morning. This morning she decided, for unknown reasons, after being dressed, to wrap the elastic band around the towel warmer. As she did so her left leg gave way, she stumbled sideways, bumping the rubbish bucket and whatever else as she collapsed into the plastic chair kept beside the toilet bowl. A few seconds later, she rose from the plastic chair and pushed her trolley out to the kitchen table for breakfast.
Now to return to the beginning of the week. On Monday a phone call from the GP had us talking to him at 4:15pm about the results of her recent blood test. Her B12 level was about twice as high (1476 pmol/L) as normal (180-740) which he does not believe was due to him giving her the B12 injection a short time before blood was taken for the blood test. He advised Vitamin D be taken at 3000 iu per day for 2 months and thereafter 2000 iu per day for ever because the blood test gave a "marked deficiency" result at < 25 nmol/L rather than 51-200. The blood test also indicated that Antineutrophil Cytoplasmic Antibody (ANCA) was positive, although of no immediate concern. Dr I obliged us with referrals for nerve conduction studies on her lower limbs (21 July) and arterial doppler ultra sound on her left leg (8 July).
Each day this week she has experienced biliousness which seems to begin in late morning but seems to be lessening. Yesterday, Saturday, at Wild Dog Respite, it began about 1pm so today she does not wish to eat any lunch. Last Tuesday at Wild Dog she sat in the foyer from about 2pm because she thought she may have been sick until I collected her at around 3:45pm. Her mobility is much better, although we had difficulty getting her into and out of the car on Monday and Tuesday. Most time she is able take herself to and from the loo. My right shoulder is slowly recovering, and when I remember I rub some Voltaren on it.
On Thursday Wild Dog provided a car and driver to take us to West Beer to see neuro Dr FC, a most thorough doctor. She copied the 70MB or more of PD records I offered her on a memory stick onto her system and when I showed her the printed images of the pink and white soles of my PWP's feet I took last year she quickly snapped them on her mobile; if I'd known I would have provided other images and videos on the memory stick. She wrote scripts for another blood test plus a urine test which were completed on the ground floor of the building as we left; a script for an MRI (18th July) and at a time to be advised an L-dopa holiday and duodopa test. The only problem on the day was the swarthy individual on guard at the gate into the car park that told our driver to let "the old people out near the lift then park over there in that slot". On our way home we feasted at McDonalds. However, today Sunday, she does not want lunch so she can avoid feeling bilious.
Friday I returned to making copious notes when she felt "crook", sleepy, tingles etc. Strangely, she bottles up her problems when with others, as on the trip to West Beer.
Saturday she realised that her speech was slurred as she spoke to the Care lady while showering. I frequently notice this.
For several days now she has felt cold (well it is winter now), more so than expected, so I assume her regulatory system is not controlling her body temperature to be warmer in a similar manner to a few months ago in warmer weather when she tended to be too hot. Last night, even though the room heater had been on she needed a quilt on her bed. On Friday evening she felt "churned up" and cold even with the heater on but 45 minutes later she was so warm she needed to remove her cardigan.
This morning at 4:40am she woke me in fear of a leak in her nappy pants. I found her diagonally across the bed all twisted in the bed clothes. She wanted to get up to sit on the commode. I didn't wish her to. She was quite warm, even her feet. So I straightened her and I think we both returned to sleep. At 7:10am she woke me again (late, since I need to rise earlier to shower, prepare Apo pump, remover her nappy pants, arrange her clothing and incontinence items prior to Personal Care arriving around 8am). She said she had been trying to wake me; she was at the foot of the bed attempting to release the "adult proof" latch on the side rail of her bed. Perhaps she had called me; I had been half asleep listening to snippets on RN since 4:30.
posted by Kilpike | 12:50 pm
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