Chapter 296 - Busy Times
Monday - Physio at the hospital.
Tuesday - Respite at the "Sheltered Workshop".
Thursday - Bus trip down to Hot Air City to hear an excellent talk by a leading PD person.
Friday - Visit by our good friends from Gong Town.
Saturday - Up the 4 lane to spend a day at the club with our friends from Big Smoke. And while we enjoyed ourselves, another friend, almost a life time one, died in hospital.
Sunday - Still in our night attire on a rainy morning.
Otherwise, our lives grind along normally. Some time ago, the last time her crawly leg syndrome changed, she described a new sensation of the "tingling" travelling around her feet, in a sort of circular fashion, before ending at her toes. Although she has not mentioned it much, at times these leg tingles become very painful. Now her mornings are much better than afternoon and evenings; as if she begins the day well and gradually ramping down to stiffness and discomfort as the day wears on. I suspect this reversal of symptoms, morning to afternoon, began with her new regime about 6 weeks ago. To the extent that while our friends were still here on Friday, she came to my dungeon to tell me that she had to go to bed - that is a first - at about 9:15pm.
We had both been afraid to travel on the bus to Hot Air City for the PD talk. We had to be at the local car park by 8am (we are no longer used to such early starts to the day), her fears of getting in and out of the bus, being cooped up in the 2 hour trip, the possibilities of needing facilities urgently, gave us both a restless night on Wednesday. I was almost keen to decide not to go, but she seemed to accept the trip as a challenge, deciding to go. I had kept my negative imaginings to myself. The bus group decided to have afternoon tea at a scenic spot; we remained in the bus.
On Friday she began the last change in her medication schedule; next Wednesday she sees the considerate neurologist again. I just did a timing test back door to front door pushing her trolley and at 9:45am, 15 minutes before her next meds, she accomplished the task in 27.62 seconds, puzzling me because her first meds were taken as usual at 6am; she should be OFF.
Tuesday - Respite at the "Sheltered Workshop".
Thursday - Bus trip down to Hot Air City to hear an excellent talk by a leading PD person.
Friday - Visit by our good friends from Gong Town.
Saturday - Up the 4 lane to spend a day at the club with our friends from Big Smoke. And while we enjoyed ourselves, another friend, almost a life time one, died in hospital.
Sunday - Still in our night attire on a rainy morning.
Otherwise, our lives grind along normally. Some time ago, the last time her crawly leg syndrome changed, she described a new sensation of the "tingling" travelling around her feet, in a sort of circular fashion, before ending at her toes. Although she has not mentioned it much, at times these leg tingles become very painful. Now her mornings are much better than afternoon and evenings; as if she begins the day well and gradually ramping down to stiffness and discomfort as the day wears on. I suspect this reversal of symptoms, morning to afternoon, began with her new regime about 6 weeks ago. To the extent that while our friends were still here on Friday, she came to my dungeon to tell me that she had to go to bed - that is a first - at about 9:15pm.
We had both been afraid to travel on the bus to Hot Air City for the PD talk. We had to be at the local car park by 8am (we are no longer used to such early starts to the day), her fears of getting in and out of the bus, being cooped up in the 2 hour trip, the possibilities of needing facilities urgently, gave us both a restless night on Wednesday. I was almost keen to decide not to go, but she seemed to accept the trip as a challenge, deciding to go. I had kept my negative imaginings to myself. The bus group decided to have afternoon tea at a scenic spot; we remained in the bus.
On Friday she began the last change in her medication schedule; next Wednesday she sees the considerate neurologist again. I just did a timing test back door to front door pushing her trolley and at 9:45am, 15 minutes before her next meds, she accomplished the task in 27.62 seconds, puzzling me because her first meds were taken as usual at 6am; she should be OFF.
| WEEK 7 Commencing Friday 31st May | ||||||
| Friday 31st | Actual Time | |||||
| 06:00 | Sin 100/25 | Sin CR 200/50 | Deralin 40 | Comtan 200 | Sifrol 1 | |
| 09:00 | ||||||
| 10:00 | Sin 250/25 | Deralin 40 | ||||
| 14:00 | Sin 250/25 | Deralin 40 | Sifrol 1.0 | |||
| 18:00 | Sin 250/25 | Deralin 40 | Comtan 200 | Sifrol 1 | ||
| 22:00 | Sin 100/25 | Sin CR 200/50 | Deralin 40 | Sifrol 1 | ||
| Panamax 500 | Panadeine 500/8 |
At the talk on Thursday doubt was cast on the old belief about keeping meds well clear of protein intake, the comment was made that with 4 or 5 medication points each day, following that rule is virtually impossible, and there may be little impact in mixing food and meds anyway. Also comments about visual hallucinations being a result of noise in the visual system made me wonder whether her fears volubly expressed while we are in traffic made me wonder whether dopamine deficiency in her visual pathways may exacerbate her fears. For instance, yesterday as we drove up the 4 lane I had set the cruise control on 105km/hr and at no time was she disturbed during the trip; yet on the return she complained I was travelling too fast even though the cruise control had not altered. Granted, the time was late afternoon and she queried why drivers applied their brakes at least half a kilometre in front of us.
Her sewing activities have slowed somewhat; she is spending much more time reading her old Mills and Boons.
Her sewing activities have slowed somewhat; she is spending much more time reading her old Mills and Boons.
posted by Kilpike | 10:38 am
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