Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Saturday, April 21, 2012

Chapter 247 - The Unexpected

Last evening I had been helping her spread a partially assembled quilt on the lounge room floor. After going to my dungeon for a short time I returned to the living area as she came up to me saying "I've just had a fall." In her sewing room again, without warning, no light-headedness, once more on her right side. No visible damage, since she didn't strike anything on the way down.

This morning I checked her shoulder & buttocks for bruising where she said she had aches; there was nothing visible.

She rises before me these days; actually I remain in bed longer, when she does Tia-Chi for some 15 minutes. When I queried that I don't hear the DVD playing she said that she has memorised the movements up to where the Physio at the hospital had taken the class. The thinks this light exercise is helpful; she has little else other than an occasional excursion with her walker.


Wednesday, April 18, 2012

Chapter 246 - A Non-eventful Month

Did I mention that one morning while sitting on the side of her bed she came out with the astounding statement that she had coughed phlegm into a tissue & noticed blood in it? I became somewhat excited. She blames it on slight nose bleeding she says she sometimes has. A few days later at the doctor's for our 'flu shots I mentioned her observation so he referred her for a chest X-ray. There has been no calls for her to visit the doctor so the results must have been clear.

When we told the doctor that her youngest sister had been diagnosed with stomach cancer he immediately wanted to know the type, which we did not know. We were none the wiser after visiting the Sisters at their perennial caravan park holiday at Easter. Just that it was a "rare" type. We came away puzzled even about what treatment was awaiting the sister. Not much help to a sibling who has already had portion of a kidney removed due to renal carcinoma as well as a large crater in her left leg after a melanoma removal. I later researched the matter to learn there are about half a dozen "rare" cancers accounting for about 4% of stomach cancers.

Late tomorrow that pre-cancerous blemish on her left leg will be frozen away now that the biopsy wound has healed.

She seems to be enjoying her Tuesday visits to her "sheltered workshop" taking an active roll in making items for their fund raising fete, although most seem to sell well before the fete. Each week she takes along some patchwork or knitting. Today we made a special visit there because some elderly soul wanted to buy another of the scarves she has made on thick fibre on large needles; it was one she had set aside for me. So down the street at lunch time to buy another 8 balls of the stuff.

Some weeks ago we saw an arty dance film at the local theatre. We must avoid such things in future because it played merry hell with her body. I failed to realise until after we were had left the theatre that most of the 90 minutes she sat rigidly trying not to shake.

We are both consistent with the Lumosity brain exercises. She often becomes frustrated with some of the testing. I don't pry; her results are a private matter. We are each sent reminder emails to test each day, otherwise I suspect I would become lazy. In time I may ask to see how her scores have improved.

Her current pill intake is as follows:

0700     Stilevo 200/50/200, Deralin 40, Crestor, Asprin
0800     Sifrol 1.0
1100     Stilevo 200/50/200, Deralin 40
1200     Sifrol 1.0
1500     Stilevo 200/50/200, Deralin 40
1600     Sifrol 1.0
1900     Stilevo 200/50/200, Deralin 40
2200     Sifrol 1.0
2400     Sinemet CR 200/50

and once a day she pops a magnesium, a folate and a COQ10.