Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, April 01, 2007

Chapter 85 - Communicating

Sometimes I don't care to write this stuff; once a moment of interest has gone I quickly forget then trying to regurgitate it from memory or from my little notebooks makes a lifeless story.

Our "standing from chair" timing tests have dwindled in number to none over the past few days while we took a picnic drive north & had visitors another day. However, I did buy a stop watch at the K place for the fantastic price of $5.25 & then spent another $50 for a few DVD movies on special. Quality movies. We have not had time to watch them all. But what we found was that over the week her standing times became lower & more regular. Must run another "trial".

She made a discovery Saturday morning a week ago. After taking Madopar Rapid at 6am each morning she has been of the habit to lay in bed until a wave of shudder flowed up her neck & through her head indicating that the medication had kicked-in, and her legs didn't require a lot of stretching. On that morning it didn't. You know me, what's changed, what is different. It seems that the night before she had dissolved the Madopar Rapid from the kettle soon after I had boiled it for an Earl Grey, and the following morning there was no sediment in the bottle of the little pill bottle. Usually there had been, requiring one or more refills of the little pill bottle with cold water to flush away the residue; sometimes she complained of "grains between my teeth". So, even though the medication had the night time to dissolve it had not done so completely, and swallowing lumps, although very small, of the stuff had been sending bursts of L-dopa into her brain. And schoolboy chemistry knows all about temperature & dissolving of solids. So each night since then she has been using very hot water for the Madopar Rapid. The medication instructions simply say dissolve in water & drink. Since that discovery she has risen a little after 7am each day, showered & dressed herself, even the dreaded bra clip, except for Wednesday morning, after a bad night when her legs wanted to be rigid, she suddenly had severe lower back pain as she left the shower, then needed the TENS machine & help dressing. One morning she even washed her hair without me being aware she had done so.

I believe travelling upsets her equilibrium so was concerned that our picnic trip north on Thursday would have bad consequences for her. Having visitors on Friday may have taken her mind off problems. All she told me was that her legs shook all Thursday night.

Earlier in the week I discovered that one of our two cordless phones was unreliable, so I decided that the time had come to replace them with three cordless handsets. She found in the junk mail a special on a 4 handset cordless set down at the K place so first thing, well 8am, I was down there. So now we have a handset in the kitchen, beside her favourite chair, next to her laptop in her sewing room & one here in my dungeon. So with the emergency call phone in our bedroom we have 5 handsets on our land line, 2 VOIP handsets for cheap calls, 3 CB radios & a broadband connection. Can we communicate or else? We nearly had some new CB radios as well; I accidentally dropped my hand held CB into the yellow in the toilet bowl. I retrieved it, washed & dried it & before I was able to remove its battery the poor thing had started audibly chirping to itself. Dis-assembly, contact spray & overnight resting cured its problems.

She's ready for church; must fly.

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