Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Sunday, August 13, 2006

Chapter 50 - Lost & Found

The 6 o'clock alarm woke us to the darkness. I touched my bedside lamp. "Do you need help?" I asked as she attempted to raise herself slightly on one elbow. "No - I'm alright" as she opened her little bottle of pills prepared last night at a bed-time ritual. She struggled with Bill's XP water bottle. "I've dropped a pill." I get up. Scramble around on the floor. Look in her bed clothes. "What colour was it?" "It was a vitamin C." "Vitamin C? I thought you took the vitamins at breakfast?" Apparently she has been taking four 500mg vitamin C's a day. Long ago I stopped recording the vitamins she has been taking for more than 6 months and only pay attention to the officially prescribed chemicals. As we both hunt for the pill she says "I'll have to get up now anyway. It has disturbed me too much." As I swing her legs over the side of the bed and raise her to put her shoes on, the offending pill falls to the floor. "Be careful Dear" I call as she almost runs on her toes in very small steps towards the bathroom. Her gait is showing signs.

Yesterday after I returned from assisting someone with a technical problem she was concerned that she had taken her noon time meds with her breakfast at mid-morning, thinking they were the other vitamins she has been taking. She has never muddled her pills before. A quandary - had she really taken the meds early or had she not prepared them last night? As the afternoon came she showed no extreme signs of "being off" so the conclusion was that the meds had been taken early.

She has decided to wean herself of the anti-depressant Dothep 25 prescribed over a year ago by the neurologist in the hot-air town to help her sleep. She will take one every second night. A good idea. The new mattress is helping her a lot. Sleeping better. I suspect she is losing her fear of going to bed. She has much less pain, although there has been a day or two when there have been pains "inside" her left leg. Looking back through my notes I have not helped her dry after a shower or helped her dress (except maybe assistance with a coat) for over a week.

Our local PD group met at the Club last Thursday. We were the first at the room set aside for us. "The lay out is better" she said, "It's not as cramped." I had her sit closest to the door at the corner of the table where she feels less cramped. The barrier of the table's edge bothers her. After the meeting our friends from hot-air town had lunch with us at the Club, then a slow walk about town then coffee back at our place. A wearying day for her, not used to socialising for so long.

A strange effect on Friday. Her 6pm meds acted very quickly, her legs became rigid. She thought she was over-medicated with too much dopamine, as she would only too clearly remember from her horror period a year ago now. This was prior to the muddle with her midday meds on Saturday.

Her nose was very stuffy on Tuesday & Wednesday to the extent that I took notice of the number of times she needed to blow & wipe her nose, more a congestion in her sinuses, but not a cold. The blowing caused slight bleeding on Wednesday night. By Thursday the problem cleared so I suppose a slight cold.

The day we collected the new mattress she also bought some slippery material to make herself some new sheets. That was on 27th July. Then we went away for a couple of days. Since we returned she has continued to sleep on the slippery sleeping bag. Last Monday 7th August she was able to cope with cutting the new material into two pieces, then a couple of days later she partially hemmed one piece. She finds difficulty motivating herself. Ages since she has embroidered anything.

Yesterday she enjoyed sitting near our front door in the sunshine. Things lost, some found.

She calls on the CB "Have you had a shower yet?"

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