Chapter 37 - A Non-titled Posting
I look through my notes wondering what to post here. For a change, I will copy verbatim my scribbles made at odd times.
Mon 5th June 1800 1CR 1I KYB lessons 2300 PD exercise 2430 1CR to bed, very cold, heater on, needed seed pillow, to toilet several times about 3 or 4
Tues 6th 0500 toilet 0700 1CR 1I 1 A 1/2L 0930 woken by doorbell 1045 rose for shower 1230 1CR 1I 1800 1CR 1I 2200 1D 2300 PD exercise 2430 1CR
Wed 7th June 0045 to bed 0100 asleep 0500 called out loudly noise like "Harold"??? then woke shaking, unable to get out of bed for toilet 0830 we both woke, she needing help to rise for toilet. Has memory of shaking a lot [in night] - we slept through the alarm meds late 1CR 1I 1A 1/2L 1045 woke & rose with mad shakes, stiffness 1130 breakfast 1145 feels over-medicated, slightly "thick tongue" speech, feels unable to keep balance, very shaky, no pain, not dizzy, but feels like falling backwards, feels as if whole body is alive but feels stiff, wanting to thrust legs out straight 1200 sweating toes curling (first in a long time) 1210 Began PD exercise as experiment [these are exercises done while seated] 1215 unable to continue exercise, sitting on chair with feet on poof watching movie 1330 shakes slowing down 1600 sleep on chair 1630 woke for shower .......
The notes I make only highlight PD issues, only sometimes referring to more normal daily events. Some people recommend doing this on a weekly basis so the patient has a perspective of where their disability is taking them. Well perhaps not the disability, which most say is incurable, but the progress of the alleviation of many of the side effects that develop, such as pain and movement problems. She finds note taking onerous & depressing, so I record my observations daily, otherwise I forget. And this blog is my attempt to summarise, so please be gentle in your comments, these notes are for our benefit, not yours, I just need an audience. Even of one, to talk to.
And so a week continues. We kept a deferred appointment (we had forgotten a week or two ago) with our Bowen lady. When told her of the sleeping difficulties she advised going to bed at 10pm, waking up at midnight for meds, then again at 7am for meds, no exercise before bed until the body clock re-establishes some sanity. I think she even said allow a 6 month time frame for this to happen. Some Bowen movements were done on her neck because that area has been becoming painful & stiff, especially when she wears a coat and hat for walking in the cold weather - the slight pressure on the back of her neck seems to force her head forwards (I have also noticed that slight bunching of bed clothes can become an insurmountable barrier to her when laying in bed). After Bowen we bought a $9 alarm clock at Kmart for midnight awakenings and the sodding thing failed last night and I think I have shredded the receipt.
She is trying to keep to this new sleep schedule, without any change in sleep behavior yet of course, except that she may sleep 1/2 an hour before the alarm goes off at midnight, although last night both she & the alarm failed in that regard.
On Saturday afternoon a short enjoyable visit to our friends recently returned from a caravan escape then yesterday a welcome noisy visit by some small ones.
Mon 5th June 1800 1CR 1I KYB lessons 2300 PD exercise 2430 1CR to bed, very cold, heater on, needed seed pillow, to toilet several times about 3 or 4
Tues 6th 0500 toilet 0700 1CR 1I 1 A 1/2L 0930 woken by doorbell 1045 rose for shower 1230 1CR 1I 1800 1CR 1I 2200 1D 2300 PD exercise 2430 1CR
Wed 7th June 0045 to bed 0100 asleep 0500 called out loudly noise like "Harold"??? then woke shaking, unable to get out of bed for toilet 0830 we both woke, she needing help to rise for toilet. Has memory of shaking a lot [in night] - we slept through the alarm meds late 1CR 1I 1A 1/2L 1045 woke & rose with mad shakes, stiffness 1130 breakfast 1145 feels over-medicated, slightly "thick tongue" speech, feels unable to keep balance, very shaky, no pain, not dizzy, but feels like falling backwards, feels as if whole body is alive but feels stiff, wanting to thrust legs out straight 1200 sweating toes curling (first in a long time) 1210 Began PD exercise as experiment [these are exercises done while seated] 1215 unable to continue exercise, sitting on chair with feet on poof watching movie 1330 shakes slowing down 1600 sleep on chair 1630 woke for shower .......
The notes I make only highlight PD issues, only sometimes referring to more normal daily events. Some people recommend doing this on a weekly basis so the patient has a perspective of where their disability is taking them. Well perhaps not the disability, which most say is incurable, but the progress of the alleviation of many of the side effects that develop, such as pain and movement problems. She finds note taking onerous & depressing, so I record my observations daily, otherwise I forget. And this blog is my attempt to summarise, so please be gentle in your comments, these notes are for our benefit, not yours, I just need an audience. Even of one, to talk to.
And so a week continues. We kept a deferred appointment (we had forgotten a week or two ago) with our Bowen lady. When told her of the sleeping difficulties she advised going to bed at 10pm, waking up at midnight for meds, then again at 7am for meds, no exercise before bed until the body clock re-establishes some sanity. I think she even said allow a 6 month time frame for this to happen. Some Bowen movements were done on her neck because that area has been becoming painful & stiff, especially when she wears a coat and hat for walking in the cold weather - the slight pressure on the back of her neck seems to force her head forwards (I have also noticed that slight bunching of bed clothes can become an insurmountable barrier to her when laying in bed). After Bowen we bought a $9 alarm clock at Kmart for midnight awakenings and the sodding thing failed last night and I think I have shredded the receipt.
She is trying to keep to this new sleep schedule, without any change in sleep behavior yet of course, except that she may sleep 1/2 an hour before the alarm goes off at midnight, although last night both she & the alarm failed in that regard.
On Saturday afternoon a short enjoyable visit to our friends recently returned from a caravan escape then yesterday a welcome noisy visit by some small ones.
posted by Kilpike | 9:12 am
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