Progression Two

Occasional notes in the life of a Parkinson patient & her carer.

Saturday, March 18, 2006

Chapter 16 - Friday Night or Saturday Morning

We just this minute returned from a brisk walk around our village. Cool is setting in for the season; we wore jackets again. She walked briskly on my arm, only swapping sides a couple of times.

Do you remember from the last post that she was up at 4am Friday morning? Well, she then slept 2 hours till 10:15am when she rose, showered & dressed without assistance then surprised me by poking her head into my dungeon. No tremors. By late afternoon she had strong tremors everywhere, except her left arm & hand. And she was stiff. Her regular meds had little effect. She was in bed by 11:30pm, me soon after & sound asleep. I woke at 2:30am (Saturday) asking "Where are you going?", thinking she was off to the bathroom. "I'm coming to bed. I was all twisted earlier & couldn't get to sleep." I helped position her into bed. Fifteen minutes later I woke to find her getting up. At 4am on my usual early morning trip to the second bathroom (I'm banned from hers) she was still seated in the back room. Still there at 7:30am, having had her meds half an hour earlier. To sum up, she had had no sleep since 10:15 the day before. She says there have been few tremors in the last few days & then only while in bed. Memory is fickle, my notes aren't, but there may be a decrease in shakes and we hope & pray it lasts. "I couldn't go to sleep because the bed slopes." Against her protests I rotated her mattress & remade the bed. After some breakfast she went to bed at 8:30am. Woke at 11am for a walk to the loo then at 12:45pm rose for the remainder of the day. Her afternoon meds failed to kick in, so mild tremors. Late in the day a shower, washed her hair and needed help drying & a little help dressing. I doubt any male would be able to "do up" a bra, I have difficulty doing hers. She spent the afternoon watching disgustingly abnormally fit athletes on TV at the Commonwealth Games.

Some days ago I convinced her to stop using a well-known brand of roll-on deodorant containing aluminium (no, that isn't a spelling error you confounded foreign national spell-checking rubbish!) oxides, the sort of toxin I shunned 20 years ago & close friends say I am just as sweet.

I'm looking forward to evolving events tonight through tomorrow; church & shopping day. Stay tuned.

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